Faculty of Medicine & Health Sciences, University of East Anglia, Norwich, UK.
Norfolk & Norwich University Hospital, Norwich, UK.
Neurodegener Dis Manag. 2020 Feb;10(1):15-25. doi: 10.2217/nmt-2019-0035. Epub 2020 Jan 24.
To develop structured guidance, recommendations and techniques for nonpharmacological management of cognitive and behavioral impairments in motor neuron disease, called the MiNDToolkit. A four-round-modified Delphi method was utilized (online and face-to-face meeting), supplemented by recent research, recommendations, expertise from allied health professionals, clinicians, researchers and clients. Round 1 (N = 47) identified allied health professionals techniques. Round 2 (N = 23) and 3 (N = 19) used expert consensus, refining general focus, specific elements and techniques. Round 4 (N = 8) applied personal, lived and occupational experience, finalizing the general structure and content of specific techniques. The MiNDToolkit is composed of multiple tools to structure decision-making through flowcharts, decision trees and checklists, provide information about impairments, assessment recommendations and techniques or strategies for nonpharmacological management cognitive or behavioral impairments in motor neuron disease.
为了制定非药物治疗运动神经元疾病认知和行为障碍的结构化指导、建议和技术，我们开发了 MiNDToolkit。我们采用了四轮改良 Delphi 方法（在线和面对面会议），并结合了最新研究、建议、来自相关健康专业人员、临床医生、研究人员和患者的专业知识。第一轮（N=47）确定了相关健康专业人员的技术。第二轮（N=23）和第三轮（N=19）使用专家共识，精炼了一般重点、具体要素和技术。第四轮（N=8）应用个人、生活和职业经验，最终确定了特定技术的总体结构和内容。MiNDToolkit 由多个工具组成，通过流程图、决策树和检查表来结构化决策，提供关于运动神经元疾病认知或行为障碍的信息、评估建议以及非药物管理认知或行为障碍的技术或策略。
