School of Social Work, University of Northern British Columbia, Prince George, BC, Canada.
School of Health Sciences, College of Arts, Social and Health, University of Northern British Columbia, Prince George, BC, Canada.
Child Care Health Dev. 2020 May;46(3):320-326. doi: 10.1111/cch.12751. Epub 2020 Jan 30.
Full parental understanding of a child's diagnosis of a developmental disability is critical to be able to ensure the best health outcome for their child. Yet factors that parents perceived as influencing their comprehension during the final diagnostic meeting have not been well identified.
This study used a qualitative interpretive description approach. Seventeen parents were interviewed who received a child's developmental diagnosis from one of the clinical multidisciplinary teams located in northern British Columbia. The interviews focused on the factors that played a role in facilitating or impeding the parents' understanding of their child's diagnosis, and on the identification of factors that influenced the way in which the child's clinical recommendations were pursued.
Two overarching themes with nine subthemes emerged from parents' reported experiences of receiving their child's developmental diagnosis. The themes and subthemes included (a) clinical encounter (including the subthemes structural considerations, professional diversity and new insights, questions regarding the assessment process, and validation) and (b) manner of the delivery of the diagnosis (emotional impact, impact on parenting practices, professionalism, professional language, and quantity of information).
Parents' accounts established and clarified the positive and negative parental determinants that aided or challenged their ability to understand their child's developmental diagnosis during the final clinical interaction with the multidisciplinary team.
父母充分了解孩子发育障碍的诊断结果对于确保孩子获得最佳健康结果至关重要。然而，父母在最终诊断会议期间认为影响其理解的因素尚未得到充分确定。
本研究采用定性解释性描述方法。采访了 17 位父母，他们从位于不列颠哥伦比亚省北部的一个临床多学科团队获得了孩子的发育诊断。访谈的重点是在促进或阻碍父母理解孩子诊断方面发挥作用的因素，以及确定影响父母追求孩子临床建议方式的因素。
父母在接受孩子发育诊断方面的报告经验中出现了两个总体主题和九个子主题。这些主题和子主题包括(a)临床接触（包括结构考虑、专业多样性和新见解、评估过程问题以及验证）和(b)诊断的传递方式（情感影响、对育儿实践的影响、专业性、专业语言和信息量）。
父母的描述确定并阐明了积极和消极的父母决定因素，这些因素有助于或挑战他们在与多学科团队的最终临床互动中理解孩子发育诊断的能力。
