• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

青少年癌症患者和幸存者的视频叙事主题内容。

Thematic content of video narratives in patients and survivors of adolescent cancer.

机构信息

Department of Pediatric Hematology, Oncology, and Stem Cell Transplantation, New York Medical College, Valhalla, New York.

Department of Psychology, Pace University, New York, New York.

出版信息

Psychooncology. 2020 Apr;29(4):759-765. doi: 10.1002/pon.5340. Epub 2020 Feb 3.

DOI:10.1002/pon.5340
PMID:31997415
Abstract

OBJECTIVE

Modern day adolescents and young adults (AYAs) connect with their peers via a number of increasingly novel ways, many of which involve social media. These online relationships are often translated offline to increase one's social standing and quality of in-person relationships. However, when an AYA is diagnosed with a chronic medical condition, like cancer, in-person relationships with peers become difficult and the online component of socialization is all that is left. Video testimonials are a way that some AYAs have chosen to reach out to their peers; however, little is known about what AYAs are saying in these videos and how they are using them to connect with peers on a more intimate level.

METHODS

This study examined the content of video testimonials of n = 25 AYA cancer patients and survivors. Transcripts of videos were coded by a team of researchers to identify themes and overall tone.

RESULTS

Results suggested that films focused on struggles AYAs faced during their cancer journeys with a number of themes emerging; additionally, a hopeful tone was seen around the overall impact that cancer had on the patient's life.

CONCLUSIONS

It may be the case that video testimonials are an effective way to allow AYA patients with a cancer history to explore their thoughts about their illness experience and fill an important social gap not available to them as they undergo treatment.

摘要

目的

现代青少年和年轻人(AYA)通过多种越来越新颖的方式与同龄人建立联系,其中许多方式涉及社交媒体。这些在线关系通常会在线下转化为增加一个人的社交地位和人际关系质量。然而,当 AYA 被诊断出患有慢性疾病(如癌症)时,与同龄人的面对面关系变得困难,而社交的在线部分是唯一剩下的。视频证言是一些 AYA 选择与同龄人接触的一种方式;然而,人们对 AYA 在这些视频中所说的内容以及他们如何利用这些视频更亲密地与同龄人建立联系知之甚少。

方法

本研究检查了 n = 25 名 AYA 癌症患者和幸存者的视频证言内容。研究人员团队对视频记录进行了编码,以确定主题和总体基调。

结果

结果表明,这些影片主要关注 AYA 在癌症治疗过程中所面临的挣扎,出现了许多主题;此外,还可以看到一种乐观的基调,围绕着癌症对患者生活的整体影响。

结论

视频证言可能是一种有效的方式,可以让有癌症病史的 AYA 患者探索他们对疾病经历的想法,并填补他们在接受治疗期间无法获得的重要社交空白。

相似文献

1
Thematic content of video narratives in patients and survivors of adolescent cancer.青少年癌症患者和幸存者的视频叙事主题内容。
Psychooncology. 2020 Apr;29(4):759-765. doi: 10.1002/pon.5340. Epub 2020 Feb 3.
2
Personal Narrative: Raising Awareness of Adolescent and Young Adult Cancer Survivors in Similarly Aged University Students.个人叙事:提高同龄大学生对青少年和青年癌症幸存者的认识。
J Adolesc Young Adult Oncol. 2019 Aug;8(4):434-441. doi: 10.1089/jayao.2018.0131. Epub 2019 Apr 30.
3
"Struck down by cancer with no old life to fall back on" a clinical study of illness experiences among Norwegian adolescent and young adult cancer survivors investigating the ethical implications of their illness narratives.“被癌症击倒,没有过去的生活可以依靠”——一项针对挪威青少年和青年癌症幸存者疾病经历的临床研究,调查了他们疾病叙述的伦理含义。
Cancer Rep (Hoboken). 2023 Apr;6(4):e1765. doi: 10.1002/cnr2.1765. Epub 2022 Dec 9.
4
Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health.青少年和青年癌症幸存者的记忆和未来思维过程使他们面临心理健康不良的风险。
Psychooncology. 2018 Dec;27(12):2709-2716. doi: 10.1002/pon.4856. Epub 2018 Sep 30.
5
Does age matter? Comparing post-treatment psychosocial outcomes in young adult and older adult cancer survivors with their cancer-free peers.年龄重要吗?比较年轻成年和老年癌症幸存者与无癌症同龄人治疗后的心理社会结局。
Psychooncology. 2018 May;27(5):1404-1411. doi: 10.1002/pon.4490. Epub 2017 Aug 4.
6
A Grounded Theory Investigation into the Psychosexual Unmet Needs of Adolescent and Young Adult Cancer Survivors.一项关于青少年和青年癌症幸存者性心理未满足需求的扎根理论研究。
J Adolesc Young Adult Oncol. 2016 Jun;5(2):135-45. doi: 10.1089/jayao.2015.0022. Epub 2015 Nov 30.
7
Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors.针对青少年和青年癌症幸存者的“重拾生活”视频会议干预措施的可行性、可接受性和安全性。
Psychooncology. 2019 Feb;28(2):284-292. doi: 10.1002/pon.4938. Epub 2018 Nov 28.
8
Perceived social support and health-related quality of life in AYA cancer survivors and controls.青少年及青年癌症幸存者和对照组的感知社会支持与健康相关生活质量
Psychooncology. 2016 Dec;25(12):1408-1417. doi: 10.1002/pon.4072. Epub 2016 Jan 26.
9
Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer.寻求虚拟支持:数字技术在晚期癌症青少年和年轻成人中的应用。
Pediatr Blood Cancer. 2022 Nov;69(11):e29938. doi: 10.1002/pbc.29938. Epub 2022 Sep 7.
10
Cancer negatively impacts on sexual function in adolescents and young adults: The AYA HOPE study.癌症对青少年和年轻成年人的性功能产生负面影响:AYA HOPE 研究。
Psychooncology. 2017 Oct;26(10):1632-1639. doi: 10.1002/pon.4181. Epub 2016 Jun 20.

引用本文的文献

1
"I had no idea what to expect": adolescent and young adults with cancer identify opportunities for patient-centered anticipatory guidance through narrative writing.“我完全不知道会发生什么”:癌症青少年和青年患者通过叙事写作确定以患者为中心的预期指导机会。
Support Care Cancer. 2025 Apr 15;33(5):380. doi: 10.1007/s00520-025-09430-9.
2
The Utility of Verbal Therapy for Pediatric Cancer Patients and Survivors: Expressive Writing, Video Narratives, and Bibliotherapy Exercises.言语治疗对儿童癌症患者及幸存者的效用:表达性写作、视频叙事和阅读疗法练习
Front Pediatr. 2021 Feb 4;9:579003. doi: 10.3389/fped.2021.579003. eCollection 2021.