Flinders Centre for Innovation in Cancer, College of Medicine and Public Health, Flinders University, Bedford Park, SA, Australia.
University of South Australia Cancer Research Institute, University of South Australia, Adelaide, SA, Australia.
Scand J Caring Sci. 2021 Mar;35(1):3-19. doi: 10.1111/scs.12822. Epub 2020 Jan 31.
Although illness perceptions have significant implications for psychological morbidity in those diagnosed with a physical illness, the strength of this relationship in their family members remains understudied. The validity of findings is dependent on the quality of the instruments used; therefore, it is essential that psychometrically robust measures of illness perceptions are available. The purpose of this systematic review was to identify, assess and compare the psychometric properties of instruments designed to measure illness perceptions in family members of individuals with chronic physical illnesses. A systematic search was conducted using MEDLINE, PubMed, CINAHL, Scopus and PsycINFO databases, and supplemented with forward and backward searches. Studies were included in the review if they described the development, adaptation or psychometric evaluation of an instrument designed to measure illness perceptions in family members of an individual with a chronic physical illness. The methodological quality of included studies was assessed using the COSMIN Risk of Bias checklist. The psychometric quality of instruments was evaluated using published quality assessment criteria. Eleven articles describing nine different instruments were included in the review. Almost all instruments were designed for parents of a child with a chronic illness. There was wide variation in the quality of methods used to develop, adapt or evaluate the instruments, and missing information restricted the evaluation of psychometric properties. Further validation is needed for all instruments before meaningful conclusions can be drawn. Findings indicate that measurement of illness perceptions in children or siblings of an individual with a chronic physical illness has been largely ignored. Future research addressing this gap would be an important addition to the current body of work examining illness perceptions in family members.
尽管疾病认知对被诊断患有身体疾病的人的心理发病率有重要影响，但这种关系在其家庭成员中的强度仍未得到充分研究。研究结果的有效性取决于所使用的工具的质量；因此，有必要提供具有心理计量学稳健性的疾病认知测量工具。本系统评价的目的是确定、评估和比较用于测量慢性身体疾病患者家庭成员的疾病认知的工具的心理计量学特性。使用 MEDLINE、PubMed、CINAHL、Scopus 和 PsycINFO 数据库进行了系统搜索，并补充了向前和向后搜索。如果研究描述了用于测量慢性身体疾病患者家庭成员的疾病认知的工具的开发、改编或心理计量学评估，则将其纳入审查。使用 COSMIN 偏倚风险检查表评估纳入研究的方法学质量。使用已发布的质量评估标准评估仪器的心理计量学质量。本综述纳入了 11 篇描述 9 种不同工具的文章。几乎所有的工具都是为患有慢性疾病的孩子的父母设计的。用于开发、改编或评估工具的方法的质量差异很大，并且由于信息缺失，限制了对心理计量学特性的评估。在得出有意义的结论之前，所有仪器都需要进一步验证。研究结果表明，对患有慢性身体疾病的个体的儿童或兄弟姐妹的疾病认知的测量在很大程度上被忽视了。解决这一差距的未来研究将是对目前研究家庭成员疾病认知的重要补充。
