School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin 4, Ireland.
School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin 4, Ireland.
Eur J Oncol Nurs. 2020 Feb;44:101700. doi: 10.1016/j.ejon.2019.101700. Epub 2019 Dec 6.
The purpose of this study was to explore the reasons for non-use of a national cancer society's cancer information services among people experiencing cancer.
This study used a qualitative design. Semi-structured interviews were conducted with a total of 17 participants who had not previously utilised the Cancer Society's information services. Data were analysed using Thematic Analysis.
The key themes to emerge from the date were 'living in the here and now' and 'awareness of the Cancer Society'. For most participants, not utilising cancer information services was a means of coping with the initial diagnosis and the impact of treatment. Those who progressed to being ready to seek information identified the multi-disciplinary team as the primary source of trusted information, with particular mention of cancer nurse specialists. For participants with children, their role as a parent was central in how they managed their diagnosis. The majority of participants lacked awareness of the range of services provided by the Cancer Society.
Reasons for non-use of cancer information services were identified as: readiness to seek information and a lack of knowledge of the Cancer Societies' services. Cancer information services need to continue make a concerted effort to enhance visibility and awareness of its services to optimise patient engagement.
本研究旨在探讨癌症患者未使用国家癌症协会癌症信息服务的原因。
本研究采用定性设计。共对 17 名之前未使用过癌症协会信息服务的参与者进行了半结构化访谈。使用主题分析对数据进行分析。
从数据中出现的主要主题是“活在当下”和“对癌症协会的认识”。对大多数参与者来说，不使用癌症信息服务是应对初始诊断和治疗影响的一种方式。那些准备好寻求信息的人将多学科团队确定为可信信息的主要来源，特别提到了癌症护士专家。对于有孩子的参与者来说，他们作为父母的角色是他们管理诊断的核心。大多数参与者对癌症协会提供的服务范围缺乏了解。
未使用癌症信息服务的原因包括：准备好寻求信息和缺乏对癌症协会服务的了解。癌症信息服务需要继续努力提高知名度和认识度，以优化患者参与度。
