Jain Avinash, Aggarwal Amita, Adams Jo, Jordan Rachel E, Sadhra Steven, Dubey Shirish, Allen Kerry, Kumar Kanta
Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.
School of Health Sciences, Faculty of Environment and Life Sciences, University of Southampton, Southampton.
Rheumatol Adv Pract. 2019 Nov 20;3(2):rkz046. doi: 10.1093/rap/rkz046. eCollection 2019.
The aim was to explore the extent to which RA impacts work productivity in patients living with RA in India.
Face-to-face semi-structured interviews took place with 13 male and seven female patients attending outpatient clinics at Sanjay Gandhi Postgraduate Institute of Medical Sciences, India, living with RA. Patients who were currently working were recruited. Data were audio recorded, transcribed by an independent translation company and analysed using the framework method of thematic analysis.
Four themes that explained patients' experiences of coping with work whilst having RA were identified. These were as follows: balancing act of work and RA, in which participants expressed their day-to-day struggle of living with RA and coping at work; workplace adaptation after RA, in which participants shared insights into communicating with employers and their efforts to adapt at the workplace; support from others and information to manage RA and work, in which participants considered seeking support from different sources that would help them cope at work and understand RA; and wanting a better support mechanism, in which participants made recommendations that could help them to cope at work.
This is the first study to explore the impact of RA on patients' work productivity in India. Patients might have different support needs compared with previous studies in other countries. Patients seem to be adopting additional coping strategies not addressed by current interventions or country systems, which might not be sufficient to support patients in remaining employed. Patients made future recommendations.
旨在探究类风湿关节炎（RA）对印度类风湿关节炎患者工作生产力的影响程度。
对印度桑贾伊·甘地医学科学研究所门诊就诊的13名男性和7名女性类风湿关节炎患者进行面对面半结构式访谈。招募目前正在工作的患者。数据进行了录音，由一家独立翻译公司转录，并采用主题分析的框架方法进行分析。
确定了四个主题，解释了患者在患类风湿关节炎期间应对工作的经历。具体如下：工作与类风湿关节炎的平衡，参与者在其中表达了他们在日常生活中与类风湿关节炎共处以及在工作中应对的挣扎；类风湿关节炎后的工作场所适应，参与者在其中分享了与雇主沟通的见解以及他们在工作场所努力适应的情况；他人的支持及管理类风湿关节炎和工作的信息，参与者在其中考虑从不同来源寻求支持，这将有助于他们在工作中应对并了解类风湿关节炎；以及希望有更好的支持机制，参与者在其中提出了有助于他们在工作中应对的建议。
这是第一项探究类风湿关节炎对印度患者工作生产力影响的研究。与其他国家之前的研究相比，患者可能有不同的支持需求。患者似乎在采取当前干预措施或国家体系未涉及的额外应对策略，而这些措施可能不足以支持患者继续就业。患者提出了未来的建议。
