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父母实施唐氏综合征儿童家庭治疗方案的经验:一项范围综述

Parents' Experiences with Implementing Therapy Home Programs for Children with Down Syndrome: A Scoping Review.

作者信息

Walker Brandon J, Washington Leon, Early Diana, Poskey Gail A

机构信息

Physical Medicine and Rehabilitation, Children's Health Specialty Center Cityville, Dallas, Texas, USA.

School of Occupational Therapy, Texas Woman's University, Denton, Texas, USA; School of Occupational Therapy, Texas Woman's University, Dallas, Texas, USA.

出版信息

Occup Ther Health Care. 2020 Jan;34(1):85-98. doi: 10.1080/07380577.2020.1723820. Epub 2020 Feb 5.

DOI:10.1080/07380577.2020.1723820
PMID:32022608
Abstract

This scoping review explores parents' experiences with implementing therapy home programs to determine the factors that influence compliance with incorporating therapy activities into their daily routines. Articles that described the experience of parents of children with Down syndrome with implementing an occupational therapy home program were included in this study. Peer-reviewed articles published within the past fifteen years (January 2003 - January 2018) were also included. Six articles met inclusion criteria. Three themes emerged: (1) emphasis on contextualization, (2) the parent-therapist relationship, and (3) emotional burden of parents. The findings suggest that practitioners develop interventions that are enfolded into the family's daily routine as well as considering the parents' emotional resources and learning style when designing therapy activities.

摘要

本综述探讨了家长在实施家庭治疗计划方面的经历,以确定影响将治疗活动纳入日常生活的依从性的因素。本研究纳入了描述唐氏综合征患儿家长实施职业治疗家庭计划的经验的文章。还纳入了过去十五年(2003年1月至2018年1月)发表的同行评审文章。六篇文章符合纳入标准。出现了三个主题:(1)强调情境化,(2)家长与治疗师的关系,以及(3)家长的情感负担。研究结果表明,从业者应制定融入家庭日常生活的干预措施,并在设计治疗活动时考虑家长的情感资源和学习风格。

相似文献

1
Parents' Experiences with Implementing Therapy Home Programs for Children with Down Syndrome: A Scoping Review.父母实施唐氏综合征儿童家庭治疗方案的经验:一项范围综述
Occup Ther Health Care. 2020 Jan;34(1):85-98. doi: 10.1080/07380577.2020.1723820. Epub 2020 Feb 5.
2
Collaborative practice with parents in occupational therapy for children: A scoping review.与家长合作进行儿童职业治疗:范围综述。
Aust Occup Ther J. 2024 Oct;71(5):833-850. doi: 10.1111/1440-1630.12974. Epub 2024 Jun 25.
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Facilitators of and Barriers to Caregiver Adherence to Home Therapy Recommendations for Infants and Children With Neuromotor and Neuromuscular Diagnoses: A Scoping Review.神经运动和神经肌肉诊断患儿家庭治疗建议的照顾者遵医行为的促进因素和障碍:系统评价。
Am J Occup Ther. 2024 Sep 1;78(5). doi: 10.5014/ajot.2024.050567.
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Children's and parents' experiences of home care provided by hospital staff: A scoping review.医院工作人员提供的家庭护理:儿童和家长的体验:范围综述。
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Parents as Adult Learners in Occupational Therapy for Children With Sensory Challenges: A Scoping Review.家长作为有感觉障碍儿童职业治疗中的成人学习者:范围综述。
Am J Occup Ther. 2023 Jan 1;77(1). doi: 10.5014/ajot.2023.050078.
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Parents' perspectives on a collaborative approach to the application of the Handwriting Without Tears(®) programme with children with Down syndrome.家长对唐氏综合征儿童应用“无泪书写”(®)计划的协作方法的看法。
Aust Occup Ther J. 2016 Aug;63(4):266-76. doi: 10.1111/1440-1630.12301. Epub 2016 Jul 13.
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Parental Adherence to Home Activities in Early Intervention for Young Children With Delayed Motor Development.家长对有运动发育迟缓幼儿早期干预家庭活动的依从性。
Phys Ther. 2021 Apr 4;101(4). doi: 10.1093/ptj/pzab023.
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Parents and Young Children with Disabilities: The Effects of a Home-Based Music Therapy Program on Parent-Child Interactions.家长和残疾儿童:基于家庭的音乐治疗计划对亲子互动的影响。
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PLoS One. 2022 Sep 6;17(9):e0274001. doi: 10.1371/journal.pone.0274001. eCollection 2022.

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Dohsa-hou training improves bimanual coordination among children with Down Syndrome.多萨疗法训练可改善唐氏综合征患儿的双手协调性。
Int J Dev Disabil. 2022 Mar 24;69(6):926-935. doi: 10.1080/20473869.2022.2052415. eCollection 2023.