Krauthammer Alex, Harel Tal, Zevit Noam, Shouval Dror S, Shamir Raanan, Weiss Batia
The Institute of Gastroenterology, Nutrition and Liver Diseases, Schneider Children's Medical Center of Israel, Petah Tikva, Israel.
The Sackler Faculty of Medicine, Tel-Aviv University, Tel Aviv, Israel.
Acta Paediatr. 2020 Oct;109(10):2119-2124. doi: 10.1111/apa.15211. Epub 2020 Feb 20.
To describe factors that might affect successful transition in young adult patients with inflammatory bowel disease (IBD).
Questionnaires regarding the personal disease history, treatment and diseases specific knowledge and patients' self-efficacy were completed by teenaged patients with IBD aged 14-18 years, during routine clinic visits. Patient answers were then compared with information obtained from the medical records and information provided by treating physician.
The study included 80 patients with IBD, 54 (67.5%) with Crohn's disease. Patients demonstrated good knowledge in their personal disease history and current treatment. Knowledge gaps were observed in medication dosages, knowledge of potential side effects and effects of smoking on disease, with only 53/80 (66%), 12/80 (15%) and 6/36 (16.7%) of patients providing correct answers. Only 25/36 (69.4%) of the patients aged 16-18 had read about their disease. All patients in 16-18 age group reported needing assistance to schedule a gastroenterologist appointment.
Knowledge and self-efficacy skills of IBD teenagers are suboptimal regarding medications, smoking and appointment management. Medical providers should work with parents and teenaged patients with IBD to allow them to attain missing information and promote self-efficacy skills, in order to reinforce readiness towards transition.
描述可能影响炎症性肠病（IBD）青年患者成功过渡的因素。
14至18岁的IBD青少年患者在常规门诊就诊时填写有关个人疾病史、治疗情况、疾病特定知识和患者自我效能的问卷。然后将患者的回答与从病历中获得的信息以及主治医生提供的信息进行比较。
该研究纳入了80例IBD患者，其中54例（67.5%）患有克罗恩病。患者对自己的个人疾病史和当前治疗表现出良好的了解。在药物剂量、潜在副作用知识以及吸烟对疾病的影响方面存在知识差距，分别只有53/80（66%）、12/80（15%）和6/36（16.7%）的患者回答正确。16至18岁的患者中只有25/36（69.4%）阅读过有关自己疾病的资料。16至18岁年龄组的所有患者都表示需要协助安排胃肠病医生的预约。
IBD青少年在药物、吸烟和预约管理方面的知识和自我效能技能欠佳。医疗服务提供者应与IBD青少年患者及其父母合作，使他们能够获取缺失的信息并提高自我效能技能，以增强过渡准备。
