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本文引用的文献

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An International Survey of Parental Attitudes to Technology Use by Their Autistic Children at Home.一项关于家长对其自闭症儿童在家中使用技术态度的国际调查。
J Autism Dev Disord. 2019 Apr;49(4):1517-1530. doi: 10.1007/s10803-018-3798-0.
2
The Delphi method-more research please.德尔菲法——请开展更多研究。
J Clin Epidemiol. 2019 Feb;106:136-139. doi: 10.1016/j.jclinepi.2018.10.011. Epub 2018 Oct 21.
3
Making the future together: Shaping autism research through meaningful participation.共同创造未来:通过有意义的参与塑造自闭症研究。
Autism. 2019 May;23(4):943-953. doi: 10.1177/1362361318786721. Epub 2018 Aug 10.
4
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014.8 岁儿童自闭症谱系障碍患病率 - 自闭症及发育障碍监测网,美国 11 个监测点,2014 年。
MMWR Surveill Summ. 2018 Apr 27;67(6):1-23. doi: 10.15585/mmwr.ss6706a1.
5
Technology use as a support tool by secondary students with autism.自闭症学生使用技术作为支持工具。
Autism. 2018 Jan;22(1):70-79. doi: 10.1177/1362361317717976. Epub 2017 Sep 22.
6
Emotion recognition training in autism spectrum disorder: A systematic review of challenges related to generalizability.自闭症谱系障碍中的情绪识别训练:对与普遍性相关挑战的系统综述。
Dev Neurorehabil. 2018 Apr;21(3):141-154. doi: 10.1080/17518423.2017.1305004. Epub 2017 Apr 10.
7
Plugged in: Electronics use in youth and young adults with autism spectrum disorder.接入:自闭症谱系障碍青少年和青年对电子设备的使用
Autism. 2016 Jan;20(1):45-54. doi: 10.1177/1362361314566047. Epub 2015 Feb 18.
8
Evidence-Based Practices for Children, Youth, and Young Adults with Autism Spectrum Disorder: A Comprehensive Review.针对患有自闭症谱系障碍的儿童、青少年和青年的循证实践:一项全面综述。
J Autism Dev Disord. 2015 Jul;45(7):1951-66. doi: 10.1007/s10803-014-2351-z.
9
Technology-Aided Interventions and Instruction for Adolescents with Autism Spectrum Disorder.针对自闭症谱系障碍青少年的技术辅助干预与指导
J Autism Dev Disord. 2015 Dec;45(12):3805-19. doi: 10.1007/s10803-014-2320-6.
10
Working memory and cognitive flexibility-training for children with an autism spectrum disorder: a randomized controlled trial.针对自闭症谱系障碍儿童的工作记忆与认知灵活性训练:一项随机对照试验。
J Child Psychol Psychiatry. 2015 May;56(5):566-76. doi: 10.1111/jcpp.12324. Epub 2014 Sep 26.

一个与自闭症群体共同开发并为其量身打造的数字支持循证实践框架。

A framework of evidence-based practice for digital support, co-developed with and for the autism community.

作者信息

Zervogianni Vanessa, Fletcher-Watson Sue, Herrera Gerardo, Goodwin Matthew, Pérez-Fuster Patricia, Brosnan Mark, Grynszpan Ouriel

机构信息

Sorbonne University, France.

University of Bath, UK.

出版信息

Autism. 2020 Aug;24(6):1411-1422. doi: 10.1177/1362361319898331. Epub 2020 Feb 6.

DOI:10.1177/1362361319898331
PMID:32026715
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7376625/
Abstract

Digital supports are any type of technologies that have been intentionally developed to improve daily living in some way. A wide array of digital supports (such as apps) have been developed for the autism community specifically, but there is little or no evidence of whether they work or not. This study sought to identify what types of evidence the autistic community valued and wanted to see provided to enable an informed choice to be made regarding digital supports. A consensus was developed between autistic people and their families, practitioners (such as therapists and teachers) as well as researchers, to identify the core aspects of evidence that everyone agreed were useful. In all, 27 people reached agreement on three categories for which evidence is required: reliability, engagement and the effectiveness of the technology. Consensus was also reached on four key sources of evidence for these three categories: hands-on experience, academic sources, expert views and online reviews. The resulting framework allows for any technology to be evaluated for the level of evidence identifying how effective it is. The framework can be used by autistic people, their families, practitioners and researchers to ensure that decisions concerning the provision of support for autistic people is informed by evidence, that is, 'evidence-based practice'.

摘要

数字支持是指任何一种为以某种方式改善日常生活而特意开发的技术类型。专门为自闭症群体开发了一系列数字支持手段(如应用程序),但几乎没有证据表明它们是否有效。本研究旨在确定自闭症群体重视哪些类型的证据,以及希望看到提供哪些证据,以便能在数字支持方面做出明智的选择。自闭症患者及其家人、从业者(如治疗师和教师)以及研究人员达成了一项共识,以确定大家都认为有用的证据的核心方面。总共有27人就需要证据的三个类别达成了一致:可靠性、参与度和技术的有效性。对于这三个类别,还就四个关键证据来源达成了共识:实践经验、学术资源、专家意见和在线评论。由此产生的框架可以对任何技术进行评估,以确定其有效性的证据水平。自闭症患者及其家人、从业者和研究人员可以使用该框架,以确保关于为自闭症患者提供支持的决策是基于证据的,即“循证实践”。