Dural Özlem, Taş İnci Sema, Akhan Süleyman Engin
İstanbul University, İstanbul Faculty of Medicine, Department of Obstetrics and Gynecology, İstanbul, Turkey
J Clin Res Pediatr Endocrinol. 2020 Feb 6;12(Suppl 1):41-45. doi: 10.4274/jcrpe.galenos.2019.2019.S0174.
For girls with physical and developmental disabilities and their families/caregivers, puberty and menstruation can present significant problems such as vulnerability, abuse risk, unintended pregnancies, difficulties with managing menstrual hygiene, abnormal uterine bleeding, dysmenorrhea, behavioral difficulties/mood concerns or changes in seizure pattern. Healthcare providers may have an important and positive impact for both the adolescents and their families/caregivers during this stage of life. Whether menstrual manipulation is indicated should be decided after a detailed history is taken from both the patient and the caregivers to determine the impact of current problems on quality of life. It should be explained that complete amenorrhea is difficult to achieve and realistic expectations should be addressed. The goals for the management of menstrual concerns should be a reduction in the amount and total days of menstrual flow, reduction of menstrual pain and suppression of ovulatory or cyclic symptoms, depending on each individual patient’s needs. Advantages and disadvantages of available treatment methods should also be discussed.
对于身体和发育有残疾的女孩及其家庭/照顾者来说,青春期和月经可能会带来重大问题,如易受伤害、有遭受虐待的风险、意外怀孕、难以管理经期卫生、子宫异常出血、痛经、行为困难/情绪问题或癫痫发作模式改变。在这个生命阶段,医疗保健提供者可能会对青少年及其家庭/照顾者产生重要且积极的影响。是否需要进行月经调节应在详细了解患者及其照顾者的病史后决定,以确定当前问题对生活质量的影响。应当说明,完全闭经很难实现,应提出现实的期望。根据每个患者的需求,管理月经问题的目标应该是减少月经量和月经总天数、减轻痛经以及抑制排卵或周期性症状。还应讨论现有治疗方法的优缺点。