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“给他们开门,但不要把他们推出去”:儿科姑息医学中家庭对医生主导的精神关怀的态度。

"Give them the door but don't push them through it": Family Attitudes Toward Physician-Led Spiritual Care in Pediatric Palliative Medicine.

机构信息

Department of Internal Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.

University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.

出版信息

J Relig Health. 2020 Dec;59(6):2899-2917. doi: 10.1007/s10943-020-00991-z.

Abstract

Little is known about pediatric caregivers' perceptions of religious or spiritual (R/S) care provided by physicians. We conducted a qualitative, semistructured interview study to understand perceptions of pediatric caregivers toward physician-led R/S care. Participants were 20 primary caregivers whose children were hospitalized and receiving palliative care services. Interviews were audio recorded, transcribed verbatim, and analyzed using constant comparative methods. Three recurrent themes emerged regarding physician-led R/S care: (1) Most caregivers view providing R/S care as a positive sign of physician empathy, while a minority (3/20) prefer to keep R/S and medical care separate, (2) many caregivers prefer R/S care from a physician with whom they have a close relationship and/or share a faith background, and (3) physicians should open the door, but allow families to lead conversations about R/S care. Caregivers have mixed perceptions on physicians engaging in R/S care; most prefer that families set the direction of R/S care for themselves and their loved ones. Physicians should be trained to evaluate families' spiritual backgrounds and needs in ways that respectfully open the door to these conversations.

摘要

关于儿科护理人员对医生提供的宗教或精神(R/S)护理的看法知之甚少。我们进行了一项定性、半结构化访谈研究,以了解儿科护理人员对医生主导的 R/S 护理的看法。参与者是 20 名主要照顾者,他们的孩子住院并接受姑息治疗服务。访谈进行了录音,并逐字转录,然后使用恒定性比较方法进行分析。关于医生主导的 R/S 护理,出现了三个反复出现的主题:(1)大多数照顾者认为提供 R/S 护理是医生同理心的积极表现,而少数(3/20)人则希望将 R/S 护理与医疗护理分开,(2)许多照顾者更喜欢与他们关系密切和/或有相同信仰背景的医生提供 R/S 护理,(3)医生应该打开大门,但允许家庭主导关于 R/S 护理的对话。护理人员对医生参与 R/S 护理的看法存在分歧;大多数人希望家庭为自己和亲人设定 R/S 护理的方向。医生应该接受培训,以评估家庭的精神背景和需求,以尊重的方式打开这些对话的大门。

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