Trinity College Dublin, Ireland.
Ulster University, Northern Ireland.
J Intellect Disabil. 2021 Dec;25(4):476-489. doi: 10.1177/1744629520905207. Epub 2020 Feb 17.
Previous studies suggest that family members of people with intellectual disabilities prefer them to move to supervised living arrangements such as group homes. In Ireland, personalised arrangements are emerging, but families have had little exposure to this option. In this qualitative study, we explored the perspectives of family members following their relative's move to personalised support options, mostly from group homes. Semi-structured interviews were conducted in 2011 with a family member of 17 people who had previously moved, with follow-up interviews held with 12 of them up to 18 months later. Thematic analysis on interview transcripts was conducted by three researchers. The family members spoke favourably of the new arrangements. A core theme of enabled independence emerged with subthemes of greater self-reliance in personal care, increased confidence, more social inclusion and gains for relatives. Reservations focussed on the need for more support hours, managing risk and loneliness.
先前的研究表明，智障人士的家庭成员更希望他们搬去有监督的生活环境，例如集体住所。在爱尔兰，个性化的安排正在出现，但家庭对此选择知之甚少。在这项定性研究中，我们在他们的亲人搬去个性化的支持选项（主要是从集体住所）后，对家庭成员的观点进行了探讨。2011 年，我们对 17 名之前已经搬过家的人的家庭成员进行了半结构化访谈，并在之后的 18 个月内对其中的 12 人进行了随访访谈。三名研究人员对访谈记录进行了主题分析。家庭成员对新安排表示赞赏。一个核心主题是赋权独立，其下还有个人护理方面的更强的自立、自信心增强、更多的社会包容和亲属受益等子主题。保留意见集中在需要更多的支持时间、管理风险和孤独感上。
