Department of Physiological Nursing, School of Nursing, University of California-San Francisco, San Francisco, CA, USA.
Department of Family Health Care Nursing, School of Nursing, University of California-San Francisco, San Francisco, CA, USA.
Int J Older People Nurs. 2020 Jun;15(2):e12304. doi: 10.1111/opn.12304. Epub 2020 Feb 19.
The findings presented in this manuscript address two key research questions: (a) What factors contribute to the initiation and maintenance of the caregiving role as performed by the grandparent-caregivers; and (b) What are the perceived benefits of caregiving as reported by grandparent-caregivers?
Grandparents in sub-Saharan Africa have cared for their grandchildren for generations, yet little is known about this role in the context of the HIV epidemic. Although the impact of the epidemic is overwhelmingly negative, specifically in Uganda, knowledge of familial context and underlying motivations and rewards that incentivise grandparent-caregivers remains limited in the literature.
Using a constructivist grounded theory approach, we explored the experiences of 32 Ugandan grandparents of grandchildren affected by HIV. Data were collected using a semi-structured and open-ended interview guide, participant observation and fieldnotes. Data analysis included open, focused and axial coding.
The data revealed the influences of extended familial structures and of cultural and gender expectations on the decision-making processes and rewards of caregiving as perceived by the grandparent-caregivers.
These findings provide a broad foundation for policy, practice, research and education interventions needed to support grandparents so they can enjoy the benefits of raising their grandchildren.
Our findings can guide education programs and clinical practice for nurses, nursing students, and other health providers on cultural considerations for holistic care provided for older adults-especially older caregivers.
本研究报告提出的研究结果主要针对两个关键研究问题：（a）是什么因素导致祖辈照顾者承担并维持照顾者的角色；（b）祖辈照顾者认为他们的照顾行为有什么好处？
在撒哈拉以南非洲，祖辈照顾孙辈的现象已持续了几代人，但在艾滋病毒流行的背景下，人们对这一角色知之甚少。尽管这场疫情的影响是压倒性的负面的，特别是在乌干达，但文献中对家庭背景以及激励祖辈照顾者的潜在动机和奖励的了解仍然有限。
我们采用建构主义扎根理论方法，探讨了 32 名受艾滋病毒影响的孙辈的乌干达祖辈的经历。研究数据通过半结构化和开放式访谈指南、参与式观察和现场记录收集。数据分析包括开放性、聚焦性和轴向编码。
数据揭示了扩展的家庭结构、文化和性别期望对照顾者决策过程和照顾行为好处的影响。
这些研究结果为支持祖父母提供了广泛的政策、实践、研究和教育干预基础，使他们能够享受抚养孙辈的好处。
我们的研究结果可以指导护士、护理学生和其他卫生提供者的教育项目和临床实践，以了解为老年人提供全面护理（特别是为老年照顾者提供全面护理）的文化因素。
