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基于移动技术的生态瞬时评估对农村男男性行为者高危行为评估的感知保密性风险。

Perceived Confidentiality Risks of Mobile Technology-Based Ecologic Momentary Assessment to Assess High-Risk Behaviors Among Rural Men Who Have Sex with Men.

机构信息

Sexual Health Research Lab, Center for Rural Health, Oklahoma State University-Center for Health Sciences, 1111 W 17th Street, Tulsa, OK, 74107, USA.

National Institute on Drug Abuse, Baltimore, MD, USA.

出版信息

Arch Sex Behav. 2021 May;50(4):1641-1650. doi: 10.1007/s10508-019-01612-x. Epub 2020 Feb 20.

Abstract

Although men who have sex with men (MSM) within rural communities are disproportionately impacted by HIV, limited HIV research and programmatic resources are directed to these communities within the U.S. There is a need for improved behavioral data collection methods to obtain more detailed information on the relationship between rural environments, sexual behavior, and substance use. Utilization of mobile health (mHealth) technologies, such as ecologic momentary assessment (EMA), has been advocated for; however, limited research has evaluated its utility among rural MSM. Forty MSM residing in rural Oklahoma were recruited to complete in-depth interviews related to participating online/mobile-based HIV prevention research. Men described a willingness to participate in HIV and substance use studies that use EMA methodologies for data collection; however, they raised various research-related concerns. In particular, participants indicated potential privacy and confidentiality concerns related to the use of the mobile technology-based EMA in public and the storage of data by researchers. Given the varying degree of sexual orientation and substance use disclosure by participants, rural MSM were largely concerned with being inadvertently "outed" within their communities. Men described the various strategies they could employ to protect private information and methods to minimize research risk. Study findings suggest that EMA is an acceptable research methodology for use among rural MSM in the context of HIV and sexual health information, when privacy and confidentiality concerns are adequately addressed. Input from community members and stakeholders is necessary to identify potential areas of concerns for participants prior to data collection.

摘要

尽管农村社区中的男男性行为者(MSM)受到艾滋病的不成比例的影响,但美国针对这些社区的艾滋病研究和项目资源有限。需要改进行为数据收集方法,以获取关于农村环境、性行为和药物使用之间关系的更详细信息。移动健康(mHealth)技术,如生态瞬间评估(EMA),已经被提倡用于艾滋病研究;然而,针对农村 MSM 群体,其效用的相关研究有限。我们招募了 40 名居住在俄克拉荷马州农村的 MSM,让他们完成与参与在线/基于移动的艾滋病预防研究相关的深入访谈。男性表示愿意参与使用 EMA 方法收集数据的艾滋病和药物使用研究;然而,他们也提出了各种与研究相关的担忧。特别是,参与者表示对移动技术为基础的 EMA 在公共场所使用以及研究人员存储数据可能存在隐私和保密方面的担忧。鉴于参与者的性取向和药物使用披露程度不同,农村 MSM 主要担心在他们的社区中被无意中“出柜”。男性描述了他们可以用来保护私人信息的各种策略,以及减少研究风险的方法。研究结果表明,当隐私和保密问题得到充分解决时,EMA 是在艾滋病和性健康信息背景下,在农村 MSM 中使用的一种可接受的研究方法。在收集数据之前,需要社区成员和利益相关者提供意见,以确定参与者可能关注的领域。

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