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[儿科肿瘤学领域中侧重于姑息治疗的医学沟通的特殊方面]

[Special aspects of medical communication in the field of pediatric oncology focusing on palliative care].

作者信息

Földesi Enikő, Hauser Péter, Hegedűs Katalin

机构信息

Pest Megyei Pedagógiai Szakszolgálat Szentendrei Tagintézménye Szentendre, Széchenyi tér 1., 2000.

Általános Orvostudományi Kar, II. Gyermekgyógyászati Klinika,Semmelweis EgyetemBudapest.

出版信息

Orv Hetil. 2020 Mar;161(9):323-329. doi: 10.1556/650.2020.31647.

DOI:10.1556/650.2020.31647
PMID:32088978
Abstract

Relation between the treating physician, the child with cancer and his/her parents is decisive in the field of pediatric oncology. Medical communication plays a crucial role in this relation. The quality of communication is particularly emphasized during the phase of palliative care in the case of children with incurable malignant disease. The proper medical communication during pediatric palliative care is subject of intensive research which is hindered by the sensitivity of the topic and the difficulties with inclusion of parents whose child has been lost or receiving palliative treatment and of health-care providers, respectively. In the present work, we review the publications focusing on palliative care in the field of pediatric oncology. Despite extensive research, only few investigations focus on the practical aspects of medical communication. Reports on the effectiveness of practical implementation of the existing theories are lacking. Drawing general conclusions is highly hindered by socio-cultural differences, including the diverse parental expectations towards doctors in different cultural and religious settings. However, there is a general agreement that early, simultaneous integration of palliative care at the time of diagnosis sharing is crucial. With the current knowledge, it is essential to conduct further research in this field considering the different socio-cultural backgrounds as well. Orv Hetil. 2020; 161(9): 323-329.

摘要

在儿科肿瘤学领域,主治医生与患癌儿童及其父母之间的关系起着决定性作用。医疗沟通在这种关系中至关重要。对于患有无法治愈的恶性疾病的儿童,在姑息治疗阶段,沟通的质量尤其受到重视。儿科姑息治疗期间恰当的医疗沟通是深入研究的主题,但该主题的敏感性以及分别纳入孩子已去世或正在接受姑息治疗的父母和医护人员存在困难,这阻碍了相关研究。在本研究中,我们回顾了专注于儿科肿瘤学领域姑息治疗的出版物。尽管进行了广泛研究,但仅有少数调查关注医疗沟通的实际方面。缺乏关于现有理论实际应用效果的报告。社会文化差异,包括不同文化和宗教背景下父母对医生的不同期望,严重阻碍了得出一般性结论。然而,人们普遍认为,在诊断时尽早同时纳入姑息治疗至关重要。基于目前的认知,考虑到不同的社会文化背景,在该领域开展进一步研究也很有必要。《匈牙利医学周报》。2020年;161(9): 323 - 329。

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