Department of Intensive Care, Elisabeth Tweesteden Hospital, Tilburg, the Netherlands; Research Department of Emergency and Critical Care, HAN University of Applied Science, Nijmegen, the Netherlands.
Research Department Innovation of Care, HAN University of Applied Sciences, Nijmegen, the Netherlands.
Aust Crit Care. 2020 Nov;33(6):526-532. doi: 10.1016/j.aucc.2020.01.004. Epub 2020 Feb 20.
Relatives of intensive care unit (ICU) patients play an important role as caregivers and can experience emotional distress, also referred to as post-intensive care syndrome-family. A deeper understanding of what relatives go through and what they need may provide input on how to strengthen family-centred care and, in the end, contribute to the reduction of symptoms of post-intensive care syndrome-family.
This is a qualitative descriptive study with semistructured face-to-face interviews after ICU transfers.
A total of 13 relatives of ICU patients participated. Relatives of ICU patients expressed five types of experiences after transfer from the ICU to the general ward: (1) relief, (2) uncertainty, (3) need to be acknowledged in becoming a caregiver, (4) sharing expectations, and (5) need for continuity in care. Relatives experience major uncertainties and prefer to be more actively involved in care and care decisions.
Relatives of ICU patients experience gaps in care during the transition from the ICU to a general ward. Nurses can play a crucial role in the need for continuity of care by proactively involving relatives during the care pathway of ICU patients.
重症监护病房（ICU）患者的亲属在照顾患者方面发挥着重要作用，他们可能会经历情绪困扰，也被称为 ICU 后综合征家庭。深入了解亲属的经历和需求，可以为加强以家庭为中心的护理提供依据，并最终有助于减轻 ICU 后综合征家庭的症状。
这是一项定性描述性研究，在 ICU 转科后进行半结构化面对面访谈。
共有 13 名 ICU 患者的亲属参与。ICU 患者的亲属在从 ICU 转到普通病房后表达了五种类型的经历：（1）宽慰，（2）不确定，（3）需要在成为照顾者方面得到认可，（4）期望分享，以及（5）需要护理的连续性。亲属经历了重大的不确定性，他们更愿意更积极地参与护理和护理决策。
ICU 患者的亲属在从 ICU 转到普通病房的过程中经历了护理的空白。护士可以通过在 ICU 患者的护理路径中主动让亲属参与，在护理连续性的需求方面发挥关键作用。
