阿曼护士主导干预对镰状细胞病患儿健康相关生活质量的影响：一项试点研究。
Effectiveness of Nurse Led Intervention on Health Related Quality of Life among Children with Sickle Cell Disease in Oman: A Pilot Study.
作者信息
Pandarakutty Suthan, Murali Kamala, Arulappan Judie, Thomas Deepa Shaji
机构信息
Lecturer of Nursing, College of Health Sciences, University of Buraimi (UOB), P. O. Box 890, P.C. 512, Alburaimi, Oman.
Head of the Department of Pediatric Nursing, Rani Meyyammai College of Nursing, Annamalai University, Chidambaram, India.
出版信息
Adv Hematol. 2019 Dec 28;2019:6045214. doi: 10.1155/2019/6045214. eCollection 2019.
UNLABELLED
The children with Sickle Cell Disease (SCD) generally have poor Health Related Quality of Life (HRQOL). The study aimed to evaluate the effectiveness of nurse led intervention on HRQOL among children with SCD.
METHODS
A total of 30 samples were selected using convenient sampling. Children with SCD and their caregivers completed Pediatric Quality of Life Inventory (PedsQL) SCD-Module version 3.0. The nurse led intervention was given to the study group for 10 consecutive weeks. The control group received the routine medical care. On completion of 10 weeks, the post-test was conducted.
RESULTS
The participants in study group had poor HRQOL scores ( > 0.05) in pre-test. After nurse led intervention, the HRQOL score in the study group significantly improved ( > 0.05) in pre-test. After nurse led intervention, the HRQOL score in the study group significantly improved ( Therefore nurse led intervention is effective in improving HRQOL among children with SCD.
未标注
镰状细胞病（SCD）患儿的健康相关生活质量（HRQOL）普遍较差。本研究旨在评估护士主导的干预措施对SCD患儿HRQOL的有效性。
方法
采用方便抽样法共选取30个样本。SCD患儿及其照顾者完成了儿童生活质量量表（PedsQL）SCD模块3.0版。研究组连续10周接受护士主导的干预措施。对照组接受常规医疗护理。10周结束后进行后测。
结果
研究组参与者在预测试中的HRQOL得分较低（>0.05）。在护士主导的干预措施实施后，研究组的HRQOL得分显著提高（>0.05）。在护士主导的干预措施实施后，研究组的HRQOL得分显著提高（因此，护士主导的干预措施对改善SCD患儿的HRQOL有效。
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