Tripathi Shashwat, ReFaey Karim, Stein Rachel, Calhoun Breanna J, Despart Amanda N, Brantley Megan C, Grewal Sanjeet S, Quinones-Hinojosa Alfredo, Wharen Robert E
Department of Neurologic Surgery, Mayo Clinic, Jacksonville, FL, USA; Department of Mathematics, University of Texas at Austin, Austin, TX, USA.
Department of Neurologic Surgery, Mayo Clinic, Jacksonville, FL, USA.
J Clin Neurosci. 2020 Apr;74:202-204. doi: 10.1016/j.jocn.2020.02.015. Epub 2020 Feb 21.
Deep Brain Stimulation (DBS) was approved by the FDA in the 1990s and is used to treat a variety of movement disorders. Patients are increasingly turning to the internet for information regarding their ailments. In this study, we aim to evaluate the accuracy and reliability of information presented in DBS-related YouTube videos.
Using the "Relevance-Based Ranking" strategy for analysis we assessed the first 3 pages of YouTube for each of the following keywords: "Deep Brain Stimulation", "DBS", "DBS for Parkinson's disease", "DBS for essential tremor", and "DBS for movement disorders". Four independent healthcare personnel evaluated the videos' education quality and informational material using the validated DISCERN tool.
Our study found that only 24% of the 42 published videos analyzed scored above a 3 on the DISCERN scoring scale (considered a "good" video). The search term "Deep Brain Stimulation" had the highest percentage of good videos (DISCERN > 3) (32%). We also found that the duration of videos was longer for the "good" videos (Good = 25.6 min vs Unhelpful = 3.0 min, P = 0.01).
YouTube is one of the largest video platforms; the uploaded videos lack reliability and institutional oversight by the experts. We believe that medical institutions should explore this way of communicating to patients by publishing evidence-based and informative videos on diseases and their management. As it is imperative that the medical field advance to combat medical misinformation.
深部脑刺激(DBS)于20世纪90年代获得美国食品药品监督管理局(FDA)批准,用于治疗多种运动障碍。患者越来越多地转向互联网获取有关其疾病的信息。在本研究中,我们旨在评估与DBS相关的YouTube视频中所呈现信息的准确性和可靠性。
我们采用“基于相关性的排名”策略进行分析,评估了YouTube上每个以下关键词的前三页:“深部脑刺激”、“DBS”、“用于帕金森病的DBS”、“用于特发性震颤的DBS”以及“用于运动障碍的DBS”。四名独立的医护人员使用经过验证的DISCERN工具评估视频的教育质量和信息材料。
我们的研究发现,在分析的42个已发布视频中,只有24%在DISCERN评分量表上得分高于3分(被认为是“好”视频)。搜索词“深部脑刺激”的好视频百分比最高(DISCERN>3)(32%)。我们还发现,“好”视频的时长更长(好视频=25.6分钟,无帮助视频=3.0分钟,P=0.01)。
YouTube是最大的视频平台之一;上传的视频缺乏可靠性且缺乏专家的机构监督。我们认为医疗机构应该通过发布关于疾病及其管理的循证且信息丰富的视频来探索这种与患者沟通的方式。因为医学领域必须进步以对抗医疗错误信息。