Areia Neide P, Góngora José N, Major Sofia, Oliveira Vivianne D, Relvas Ana P
Centre for Social Studies, University of Coimbra, Coimbra, Portugal.
Faculty of Psychology, University of Salamanca, Salamanca, Spain.
Palliat Support Care. 2020 Oct;18(5):580-588. doi: 10.1017/S1478951520000127.
The terminal phase of cancer represents a major crisis for the family system. Regardless of the caregiving role they undertake, family members are forced to address multiple impacts when facing the approaching death of their terminally ill loved one. International guidelines recognize the importance of integrating the family into a care plan. However, more needs to be known about how to deliver optimal family support. The purpose of this study is to review the current state of the art in family/caregiver-focused interventions of people with terminal cancer in palliative care.
For this purpose, an overview of the literature's systematic reviews on the topic was conducted to select Randomized Controlled Trials (RCTs) on family/caregiver-focused interventions.
Nine interventions were found in the systematic reviews of literature and meta-analysis. These family/caregiver-focused interventions were then thoroughly and critically analyzed. Despite the heterogeneity with regard to their characteristics, the interventions commonly focused on caregiving matters, were brief in duration, and delivered by non-mental health experts. The efficacy of such interventions was seen as modest.
Family/caregiver-focused interventions in palliative care remain a matter of concern and more research is needed to identify adequate and effective ways of helping families that face the crisis of terminal illness in the system.
癌症终末期对家庭系统而言是一场重大危机。无论承担何种照护角色,家庭成员在面对身患绝症的亲人临近死亡时,都不得不应对多种影响。国际指南认可将家庭纳入照护计划的重要性。然而,对于如何提供最佳的家庭支持,仍有更多需要了解的地方。本研究的目的是回顾姑息治疗中以家庭/照护者为重点的终末期癌症患者干预措施的当前技术水平。
为此,对该主题的文献系统评价进行了概述,以筛选关于以家庭/照护者为重点的干预措施的随机对照试验(RCT)。
在文献系统评价和荟萃分析中发现了九种干预措施。然后对这些以家庭/照护者为重点的干预措施进行了全面且批判性的分析。尽管这些干预措施在特征上存在异质性,但它们通常侧重于照护问题,持续时间较短,且由非心理健康专家实施。此类干预措施的效果被认为较为有限。
姑息治疗中以家庭/照护者为重点的干预措施仍是一个值得关注的问题,需要更多研究来确定帮助处于绝症危机中的家庭的充分且有效的方法。