Suppr超能文献

医患关系中的融洽与田园风光:癌症诊断过程中患者对护理、选择和医疗权威的多国故事研究。

The convivial and the pastoral in patient-doctor relationships: a multi-country study of patient stories of care, choice and medical authority in cancer diagnostic processes.

机构信息

Unit of Academic Primary Care, Warwick Medical School, University of Warwick, Warwick, UK.

Research Centre for Cancer Diagnosis in Primary Care, Research Unit of General Practice & Department of Anthropology, Aarhus University, Aarhus, Denmark.

出版信息

Sociol Health Illn. 2020 May;42(4):844-861. doi: 10.1111/1467-9566.13067. Epub 2020 Feb 26.

Abstract

Experiences of cancer diagnosis are changing in light of both the increasingly technological-clinical diagnostic processes and the socio-political context in which interpersonal relations take place. This has raised questions about how we might understand patient-doctor relationship marked by asymmetries of knowledge and social capital, but that emphasise patients' empowered choices and individualised care. As part of an interview study of 155 participants with bowel or lung cancer across Denmark, England and Sweden, we explored participants' stories of the decisions made during their cancer diagnostic process. By focusing on the intersections of care, choice and medical authority - a convivial pastoral dynamic - we provide a conceptual analysis of the normative ambivalences in people's stories of their cancer diagnosis. We found that participants drew from care, choice and medical authority to emphasise their relationality and interdependence with their doctors in their stories of their diagnosis. Importantly negotiations of an asymmetrical patient-doctor relationship were part of an on-going realisation of the healthcare processes as a human endeavour. We were therefore able to draw attention to the limitations of dichotomising emancipatory-empowerment discourses and argue for a theorisation of the patient-doctor relationship as a contextually bounded and relationally ambivalent humanity.

摘要

由于日益复杂的技术临床诊断过程以及人际互动所发生的社会政治背景,癌症诊断的体验正在发生变化。这引发了一些问题,即我们如何理解以知识和社会资本不对称为特征但强调患者有能力做出选择和接受个体化护理的医患关系。作为丹麦、英国和瑞典 155 名肠癌或肺癌患者参与的访谈研究的一部分,我们探讨了参与者在癌症诊断过程中所做决策的故事。通过关注关怀、选择和医疗权威(一种和谐的牧领动态)的交集,我们对人们在癌症诊断故事中所体现的规范性矛盾进行了概念分析。我们发现,参与者在描述自己的诊断时,从关怀、选择和医疗权威中汲取了与医生的关系,并强调了他们之间的关系和相互依存性。重要的是,对医患关系不对称的协商是对医疗保健过程作为一项人类事业的持续认识的一部分。因此,我们能够注意到将解放性授权话语进行二分法的局限性,并主张将医患关系理论化为一种具有语境限制和关系矛盾的人性。

相似文献

2
Connective and Tactfully Tactical: Connective Tactics and Professional Authority in Doctor-Patient Relationships.
Soc Sci Med. 2023 Jun;326:115924. doi: 10.1016/j.socscimed.2023.115924. Epub 2023 Apr 28.
3
4
5
Inter-cultural and cross-cultural communication through physicians' lens: perceptions and experiences.
Int J Med Educ. 2020 Aug 20;11:158-168. doi: 10.5116/ijme.5f19.5749.
6
The doctor-patient relationship as a toolkit for uncertain clinical decisions.
Soc Sci Med. 2016 Jun;159:108-15. doi: 10.1016/j.socscimed.2016.05.002. Epub 2016 May 3.
10
[The origin of informed consent].
Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27.

引用本文的文献

1
Cancer Patients' Experiences of Burden when Involved in Treatment Decision Making.
Med Decis Making. 2025 Jul;45(5):533-544. doi: 10.1177/0272989X251334979. Epub 2025 Apr 29.
3
Pandemic delay: social implications and challenges for palliative care.
Palliat Care Soc Pract. 2023 Mar 21;17:26323524231159146. doi: 10.1177/26323524231159146. eCollection 2023.
4
From loyalty to resignation: Patient-doctor figurations in type 1 diabetes.
Sociol Health Illn. 2021 Jul;43(6):1388-1404. doi: 10.1111/1467-9566.13304. Epub 2021 May 28.

本文引用的文献

2
How wide is the Goldilocks Zone in your health system?
J Health Serv Res Policy. 2019 Jan;24(1):52-56. doi: 10.1177/1355819618790985. Epub 2018 Jul 31.
4
The sociology of cancer: a decade of research.
Sociol Health Illn. 2018 Mar;40(3):552-576. doi: 10.1111/1467-9566.12662. Epub 2018 Feb 15.
8
Patient-centredness and consumerism in healthcare: an ideological mess.
J R Soc Med. 2017 Nov;110(11):425-427. doi: 10.1177/0141076817731905. Epub 2017 Sep 26.
9
Montgomery and informed consent: where are we now?
BMJ. 2017 May 12;357:j2224. doi: 10.1136/bmj.j2224.
10
'Constrained collaboration': Patient empowerment discourse as resource for countervailing power.
Sociol Health Illn. 2016 Nov;38(8):1364-1378. doi: 10.1111/1467-9566.12480. Epub 2016 Aug 28.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验