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围产期临终关怀与姑息治疗的可能性与挑战

[Possibilities and challenges of perinatal hospice-palliative care].

作者信息

Zsák Éva, Hegedűs Katalin

机构信息

Általános Orvostudományi Kar, Magatartástudományi Intézet,Semmelweis EgyetemBudapest, Nagyvárad tér 4., 1089.

出版信息

Orv Hetil. 2020 Mar;161(12):452-457. doi: 10.1556/650.2020.31636.

DOI:10.1556/650.2020.31636
PMID:32172586
Abstract

Perinatal hospice care is a special form of paediatric palliative care, with a focus on prenatally diagnosed malformation, providing physical, psychological and mental support with a holistic approach for the families. Our aim was to analyse how perinatal hospice-palliative care can be implemented and what opportunities it may provide on the basis of available professional guidelines. We introduce study and analysis of the professional guidelines and protocols, mainly from Anglo-Saxon countries, and describe some examples of best practices. Perinatal hospice is a specially demanding care regarding professional and personal challenges. Standardised guidelines based on consensus can serve as starting points, describing proper care and its conditions. Moreover, they can facilitate communication and coordinative processes between the collaborating specialists. Challenging conditions and possible solutions to them can be identified during supportive formative courses. Continuous formation means competency development in palliative care as well as in adequate communication. Orv Hetil. 2020; 161(12): 452-457.

摘要

围产期临终关怀护理是儿科姑息治疗的一种特殊形式,专注于产前诊断出的畸形,以整体方法为家庭提供身体、心理和精神支持。我们的目的是根据现有的专业指南,分析围产期临终关怀 - 姑息治疗如何实施以及它可能提供哪些机会。我们介绍了主要来自盎格鲁 - 撒克逊国家的专业指南和协议的研究与分析,并描述了一些最佳实践的例子。围产期临终关怀在专业和个人挑战方面是一种特别苛刻的护理。基于共识的标准化指南可以作为起点,描述适当的护理及其条件。此外,它们可以促进合作专家之间的沟通和协调过程。在支持性的形成性课程中可以识别具有挑战性的情况及其可能的解决方案。持续培训意味着在姑息治疗以及充分沟通方面的能力发展。《匈牙利医学周报》。2020年;161(12): 452 - 457。

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