Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH, USA.
Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
J Health Care Chaplain. 2020 Apr-Jun;26(2):45-57. doi: 10.1080/08854726.2020.1713647. Epub 2020 Mar 14.
Cystic fibrosis (CF) is a chronic life-shortening disease requiring significant coping. Spiritual belief relates to treatment behaviors. Little is known about spirituality's role in adults diagnosed as children, nor how it compares with adults diagnosed as adults. Adults over 18 years, diagnosed as children completed a questionnaire; some were randomized to also participate in an interview or daily phone diary to measure adherence. Qualitative analyses of 25 adults are presented. Participants reframed their disease as part of a Divine Plan, in which Divine assistance was conditional upon adherence. Linear regression models of spiritual constructs on airway clearance, nebulized medication, and exercise are presented. Adults diagnosed as children related spirituality to CF in ways both consistent and different from adults diagnosed as adults. Spiritual beliefs were related to adherence determinants and intentions. Increased understanding of the relationship between spirituality and health behaviors is important to providing person-centered care.
囊性纤维化(CF)是一种需要大量应对的慢性缩短生命的疾病。精神信仰与治疗行为有关。对于儿童期诊断为成人的成年人的精神作用,以及与成人期诊断为成人的成年人的精神作用,人们知之甚少。18 岁以上,儿童期诊断的成年人完成了一份问卷;一些人被随机分配参加访谈或每日电话日记,以衡量依从性。呈现了对 25 名成年人的定性分析。参与者将他们的疾病重新定义为神圣计划的一部分,在这个计划中,神圣的帮助取决于依从性。呈现了精神结构对气道清除、雾化药物和运动的线性回归模型。儿童期诊断的成年人将精神信仰与 CF 联系起来的方式既与成人期诊断的成年人一致,也有不同。精神信仰与依从性决定因素和意图有关。增加对精神信仰与健康行为之间关系的理解,对于提供以患者为中心的护理非常重要。