School of Community Health Sciences, Counseling and Counseling Psychology, Willard Hall Oklahoma State University, Stillwater, OK, USA.
University of Tulsa, Tulsa, OK, USA.
Haemophilia. 2020 May;26(3):e66-e73. doi: 10.1111/hae.13959. Epub 2020 Mar 16.
Minimal research has been conducted examining the relationship of positive psychology variables with quality of life (QOL) for individuals with bleeding disorders. While many individuals manage their bleeding disorders well, some are at higher risk of developing psychosocial complications due to the daily stressors of managing illness-related symptoms.
The purpose of this study is to better understand the relationships between two positive psychology variables, self-compassion and hope and QOL (overall, psychosocial and physical) among individuals diagnosed with bleeding disorders.
Participants completed a survey identifying demographic information as well as rating scales of self-compassion, hope and quality of life. We conducted Pearson correlational and standard multiple regression analyses to explore the bivariate and linear relationships between the aforementioned variables in a sample of 86 patients with bleeding disorders between the ages of 15 and 65.
Self-compassion and hope were significantly related to QOL. Together, self-compassion and hope were predictive of overall QOL, psychosocial QOL and physical QOL. However, hope was the only individual predictor of all three QOL dimensions.
Due to the significant relationships found between self-compassion, hope and QOL in this sample, it may be beneficial to incorporate positive psychology factors into the treatment of those diagnosed with bleeding disorders, especially those at higher risk for decreased QOL.
很少有研究探讨积极心理学变量与出血性疾病患者生活质量（QOL）之间的关系。尽管许多人可以很好地控制他们的出血性疾病，但由于管理与疾病相关症状的日常压力，一些人面临更高的发生心理社会并发症的风险。
本研究旨在更好地理解两个积极心理学变量——自我同情和希望与出血性疾病患者的生活质量（整体、心理社会和身体）之间的关系。
参与者完成了一项调查，其中包括人口统计学信息以及自我同情、希望和生活质量的评分量表。我们进行了 Pearson 相关和标准多元回归分析，以探索 86 名年龄在 15 岁至 65 岁之间的出血性疾病患者样本中上述变量之间的双变量和线性关系。
自我同情和希望与 QOL 显著相关。自我同情和希望共同预测了整体 QOL、心理社会 QOL 和身体 QOL。然而，希望是所有三个 QOL 维度的唯一个体预测因素。
由于在该样本中发现了自我同情、希望和 QOL 之间的显著关系，因此将积极心理学因素纳入出血性疾病患者的治疗中可能是有益的，尤其是那些 QOL 下降风险较高的患者。
