University of California San Francisco and the San Francisco VA Medical Center, United States.
formerly with Neurelis Inc., United States.
Epilepsy Res. 2020 May;162:106233. doi: 10.1016/j.eplepsyres.2019.106233. Epub 2019 Nov 2.
This review and commentary presents and discusses the major categories of digital tools that are currently available to epilepsy patients. This review synthesizes the breadth of resources that may be used to create a comprehensive self-management platform. The manuscript organizes the discussion into the following topics: self-management education programs, electronic diaries for self-monitoring, and automated wearables for seizure detection. Despite being available for many years, these tools are utilized by only a small fraction of epilepsy patients. To directly address this, the discussion section will opine on some of the possible barriers, including a lack of historical precedent or prescribing infrastructure, a lack of financial incentives, concerns about data privacy or liability, and uncertainty about the supporting evidence for these solutions.
这篇综述和评论介绍并讨论了目前可供癫痫患者使用的主要类别的数字工具。本综述综合了可用于创建全面自我管理平台的广泛资源。本文将讨论内容组织为以下主题:自我管理教育计划、用于自我监测的电子日记和用于癫痫发作检测的自动化可穿戴设备。尽管这些工具已经存在多年,但只有一小部分癫痫患者在使用它们。为了直接解决这个问题,讨论部分将对一些可能的障碍发表意见,包括缺乏历史先例或处方基础设施、缺乏经济激励措施、对数据隐私或责任的担忧,以及对这些解决方案的支持证据的不确定性。