Stellato Kira, Romanò Massimo
S.C. Centro Cardiovascolare e Medicina dello Sport, ASUI di Trieste.
Comitato Ordinatore Master Universitario di II Livello in Cure Palliative, Università degli Studi, Milano.
G Ital Cardiol (Rome). 2020 Apr;21(4):306-308. doi: 10.1714/3328.32992.
The Italian law 219/2017, enacted on January 31, 2018, regulates patients' informed consent, personalized care planning and advance directives. The law provides for patient's self-determination in all phases of life. This also applies to patients suffering from chronic, progressive, terminal disease such as heart failure. In fact, the clinical and psychosocial trajectory for heart failure patients demands an interdisciplinary, systemic approach. Advance directives should be tailor-made to patient's needs and dynamically updated through the course of the disease according to patient's and family informed and shared decision-making. Healthcare professionals will require education and training to stay up to the task both clinically, psychologically and emotionally.
2018年1月31日颁布的意大利第219/2017号法律对患者的知情同意、个性化护理计划和预立医疗指示进行了规范。该法律规定患者在生命的各个阶段都有自主决定权。这同样适用于患有慢性、进行性、终末期疾病(如心力衰竭)的患者。事实上,心力衰竭患者的临床和心理社会轨迹需要一种跨学科的、系统性的方法。预立医疗指示应根据患者的需求量身定制,并在疾病过程中根据患者及其家属的知情和共同决策进行动态更新。医疗保健专业人员需要接受教育和培训,以便在临床、心理和情感方面胜任这项任务。