Department of Nursing, Cheongju University, Cheongju, South Korea.
Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, Seoul, South Korea.
Rehabil Nurs. 2021;46(2):73-82. doi: 10.1097/rnj.0000000000000261.
This study aimed to explore parents' perceptions of self-management behaviors for their children with spina bifida (SB).
Qualitative method.
In-depth interviews were conducted with nine Korean parents of children with SB. The data were analyzed using the content analysis method.
Parental perceptions of the experiences of self-management behaviors in children with SB were classified into risk factors that hinder self-management behaviors and protective factors that accelerate them. Each category of factors was then further classified into child-, parent-, and school-related factors.
To promote self-management behaviors in children with SB, reducing risk factors and promoting protective factors considering child, family, and school dimensions based on cultural differences are necessary.
Rehabilitation nurses should be considered essential healthcare providers who can offer stepwise guidance to achieve self-management behaviors in children with SB according to their stage of development.
本研究旨在探讨父母对患有脊柱裂（SB）的儿童进行自我管理行为的看法。
定性方法。
对 9 名韩国 SB 儿童的父母进行了深入访谈。使用内容分析法对数据进行分析。
父母对 SB 儿童自我管理行为体验的看法分为阻碍自我管理行为的危险因素和加速自我管理行为的保护因素。每类因素又进一步分为与儿童、父母和学校相关的因素。
为了促进 SB 儿童的自我管理行为，有必要根据文化差异，考虑儿童、家庭和学校等方面的危险因素和促进保护因素。
康复护士应被视为基本的医疗保健提供者，他们可以根据儿童的发展阶段，为实现 SB 儿童的自我管理行为提供逐步指导。
