School of Nursing, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Ryan's Case for Smiles, Wayne, Pennsylvania.
Pediatr Blood Cancer. 2020 Jun;67(6):e28281. doi: 10.1002/pbc.28281. Epub 2020 Apr 11.
To describe how pediatric cancer-induced financial distress and perceptions of their social role affected fathers' psychological responses to this distress, and quality of life (QOL) for them and their families.
We analyzed father-only responses from a larger cross-sectional survey study about the impact of pediatric cancer-induced financial distress on parents. Our analytic sample was n = 87 fathers who participated in the larger study. We analyzed their data using descriptive statistics and directed content analysis.
Conflicting role responsibilities (be there for child; work to maintain income and insurance coverage) seemed to generate responses resembling characteristic posttraumatic stress symptoms in reaction to acute declines in family finances and/or the chronic stress of insufficient finances to meet financial demands, that is, financial trauma. Fathers' personal sense of not being able to adequately provide for their child with cancer and also meet their family's basic needs produced embarrassment and humiliation, which led to discomfort talking about finances; fear, persistent thoughts and anxiety about money; reduced joy; beliefs that they did not deserve to express their needs; and feeling vulnerable to repeated financial stressors.
Pediatric cancer-induced financial burden contributed to fathers' symptom severity and burden, and QOL declines. Clinicians should develop sensitivity to the multiple ways that pediatric cancer affects individuals and families. Future research should examine the effects of pediatric cancer-induced financial burden on mothers, and develop ways to sensitively and systematically assess financial burden, associated psychological responses and declines in QOL, and intervene as indicated.
描述儿童癌症引起的经济困境以及他们对社会角色的认知如何影响父亲对这种困境的心理反应，以及他们及其家庭的生活质量（QOL）。
我们分析了一项关于儿童癌症引起的经济困境对父母影响的更大横断面调查研究中仅父亲的反应。我们的分析样本为 87 名参与较大研究的父亲。我们使用描述性统计和定向内容分析来分析他们的数据。
相互冲突的角色责任（照顾孩子；工作以维持收入和保险覆盖）似乎会产生类似于急性家庭财务衰退或满足财务需求的慢性压力下的特征创伤后应激症状的反应，即财务创伤。父亲个人感到无法为患有癌症的孩子提供足够的照顾，也无法满足家庭的基本需求，这导致了他们在谈论财务问题时感到尴尬和羞辱；恐惧、对金钱的持续想法和焦虑；减少了快乐；他们认为自己没有权利表达自己的需求；并感到容易受到反复的财务压力源的影响。
儿童癌症引起的经济负担导致了父亲的症状严重程度和负担以及 QOL 的下降。临床医生应该对儿童癌症影响个人和家庭的多种方式保持敏感。未来的研究应该研究儿童癌症引起的经济负担对母亲的影响，并开发方法来敏感和系统地评估经济负担、相关心理反应和 QOL 的下降，并根据需要进行干预。
