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蝴蝶的蜕变:16-25 岁青少年期 1 型糖尿病患者的生活经历。

Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition period.

机构信息

School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.

Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.

出版信息

Int J Qual Stud Health Well-being. 2020 Dec;15(1):1748362. doi: 10.1080/17482631.2020.1748362.

Abstract

: To explore the life experiences of patients with type 1 diabetes transition from adolescence into adulthood in Taiwan.: Descriptive phenomenological design was used. Fourteen participants were individually interviewed using a semi-structured interview.: The life experiences of patients with type 1 diabetes transition from adolescence into adulthood experience a metamorphosis from awareness of responsibility to figuring out a way to care for themselves. Six themes emerged: (1) hibernation: awareness of responsibility; (2) emergence: attempts to take responsibility; (3) perseverance: encountering difficulties; (4) anxiety: multiple worries; (5) hesitation: back-and-forth," and (6) exit: finding a way out.": During the transition phase, the participants experienced the trials of various situations. Regardless of whether they are able to independently bear the responsibilities of self-management, they all hope to turn around the challenges of disease control and take ownership of their disease. Like a butterfly that emerges from a cocoon, they hoped to overcome the dangers of taking flight through trial and error and navigating the world. The results of this study can serve as a reference for clinical care and developing localized intervention strategies targeted to the transition period between adolescence and young adulthood.

摘要

: 探讨台湾 1 型糖尿病患者从青少年过渡到成年的生活经历。: 采用描述性现象学设计。使用半结构化访谈对 14 名参与者进行了个体访谈。: 1 型糖尿病患者从青少年过渡到成年的生活经历经历了从意识到责任到寻找自我照顾方法的转变。出现了六个主题:(1)冬眠:意识到责任;(2)出现:试图承担责任;(3)坚持:遇到困难;(4)焦虑:多重担忧;(5)犹豫:摇摆不定;(6)退出:找到出路。: 在过渡阶段,参与者经历了各种情况的考验。无论他们是否能够独立承担自我管理的责任,他们都希望能够扭转疾病控制的挑战,掌握自己的疾病。就像蝴蝶从茧中破茧而出一样,他们希望通过反复试验和摸索世界来克服飞行的危险。本研究的结果可为临床护理和制定针对青少年向成年早期过渡的本地化干预策略提供参考。

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