Vaingankar Janhavi Ajit, Cetty Laxman, Subramaniam Mythily, Lee Ying Ying, Chong Siow Ann, Lee Helen, Verma Swapna
Research Division, Institute of Mental Health, Singapore.
Ann Acad Med Singap. 2020 Apr;49(4):186-198.
Recovery from psychosis relates to connectedness, hope for the future, identity, meaning in life and empowerment. The process of recovery is often described as gradual and non-linear, with many stages and turning points, and without a definitive end point. This qualitative study aims to understand what recovery means to clients, to better understand their unique recovery process and what helps in recovery among clients with lived experience of first episode psychosis (FEP) in a developed Asian setting.
MATERIALS & METHODS: The study design and interview guide development included inputs from persons with psychosis, following which 7 focus group discussions were conducted with 40 FEP clients of a tertiary care psychiatric institute.
Thematic qualitative analysis identified three themes: 1) meaning of recovery (where participants expressed their views on what recovery meant to them); 2) recovery as a journey (due to the constant ups and downs in the long process of recovery, it was often articulated as a "journey"); and 3) facilitators of recovery (related to resources, practices and experiences that supported their recovery).
The emergent themes provide an understanding of the meaning of recovery to persons with FEP, their experiences as they proceed with their recovery journey and factors they found helpful. The importance of acceptance of the condition and the personal role the individual plays in his or her own recovery was evident in the narratives of the participants. The study suggests a need to incorporate recovery-relevant approaches right from the first episode of psychosis.
从精神病中康复与人际关系、对未来的希望、身份认同、生活意义和赋权相关。康复过程通常被描述为渐进且非线性的,有许多阶段和转折点,且没有明确的终点。这项定性研究旨在了解康复对患者意味着什么,以便更好地理解他们独特的康复过程,以及在亚洲发达地区有首次发作精神病(FEP)经历的患者中,哪些因素有助于康复。
研究设计和访谈指南的制定纳入了精神病患者的意见,随后对一家三级护理精神病研究所的40名FEP患者进行了7次焦点小组讨论。
主题定性分析确定了三个主题:1)康复的意义(参与者表达了他们对康复对自己意味着什么的看法);2)康复是一段旅程(由于康复漫长过程中不断的起伏,它常被表述为一段“旅程”);3)康复的促进因素(与支持他们康复的资源、做法和经历相关)。
新出现的主题有助于理解FEP患者康复的意义、他们在康复旅程中的经历以及他们认为有帮助的因素。在参与者的叙述中,接受病情以及个人在自身康复中所起的作用的重要性显而易见。该研究表明,从精神病首次发作起就需要纳入与康复相关的方法。