Kye Su Yeon, Han Kyu-Tae, Choi Jinyoung, Jho Hyun Jung, Park So Jung, Song In Gyu, Nam Eun Jung, Chang Yoon Jung
Division of Cancer Control and Policy, National Cancer Control Institute, National Cancer Center, Goyang, Korea.
Department of Hospice Palliative Service, National Cancer Center, Goyang, Korea.
J Pain Symptom Manage. 2020 Sep;60(3):503-511. doi: 10.1016/j.jpainsymman.2020.04.016. Epub 2020 Apr 23.
Providing hospice and palliative care (HPC) early in the course of care for patients with life-threatening illness is important for improving patient quality of life. However, little literature exists for factors affecting to the intention to use early palliative care (EPC) of general population.
This study aimed to identify the sources of information about HPC, investigate whether they affect intention to use HPC and EPC, and examine the relationship between the components of a good death and the intention to use HPC and EPC.
A stratified nationwide cross-sectional survey including 1500 participants, 20-74 years old, was conducted to investigate their intentions to use HPC and EPC, available information sources, and perceived components of a good death.
The main sources of information about HPC were television and radio. Information acquired from health professionals was positively associated with the intention to use EPC. Although regarding a good relationship with family as a component of a good death was related to low intention to use EPC, being able to trust medical staff, being involved in decisions about care, and being respected as an individual were associated with high intention to use EPC.
Information from health care providers and public awareness through education and publicity efforts are necessary to inform the public about the benefits of EPC. Furthermore, it is essential that medical staff cultivate the skills necessary to secure public trust and provide care that respects patients until the end of their lives.
在对危及生命疾病患者的护理过程中尽早提供临终关怀和姑息治疗（HPC）对于提高患者生活质量很重要。然而，关于影响普通人群使用早期姑息治疗（EPC）意愿的因素的文献很少。
本研究旨在确定关于HPC的信息来源，调查这些来源是否影响使用HPC和EPC的意愿，并检验善终的各个组成部分与使用HPC和EPC意愿之间的关系。
进行了一项包括1500名年龄在20至74岁之间参与者的全国分层横断面调查，以调查他们使用HPC和EPC的意愿、可用的信息来源以及对善终的认知组成部分。
关于HPC的主要信息来源是电视和广播。从医疗专业人员那里获得的信息与使用EPC的意愿呈正相关。虽然将与家人的良好关系视为善终组成部分与使用EPC的低意愿相关，但能够信任医务人员、参与护理决策以及被尊重为个体与使用EPC的高意愿相关。
来自医疗保健提供者的信息以及通过教育和宣传努力提高公众意识对于让公众了解EPC的益处是必要的。此外，医务人员培养获得公众信任所需的技能并提供尊重患者直至生命结束的护理至关重要。
