如何改善运动神经元病的以患者为中心的护理？

How can we improve patient-centered care of motor neuron disease?

机构信息

Australian Institute of Health Service Management, University of Tasmania, Sydney, New South Wales, Australia.

Centre for Neuroscience of Speech, University of Melbourne, Melbourne, Victoria, Australia.

出版信息

Neurodegener Dis Manag. 2020 Apr;10(2):95-101. doi: 10.2217/nmt-2019-0031. Epub 2020 Apr 30.

DOI:10.2217/nmt-2019-0031

PMID:32352344

Abstract

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

摘要

这篇观点论文讨论了为患有运动神经元病的人提供以患者为中心的护理。我们从以患者为中心的护理文献中为这一人群在一线护理、服务提供、研究和卫生系统组织方面确定了挑战并提供了解决方案。澳大利亚和国际运动神经元病护理的例子被用来说明实践和政策的相关问题。