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神经科医生对加拿大儿科耐药性癫痫使用医用大麻的看法:一项定性访谈研究。

Neurologists' perspectives on medical cannabis for pediatric drug-resistant epilepsy in Canada: A qualitative interview study.

机构信息

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Cardiovascular Research Methods Centre, University of Ottawa Heart Institute, Ottawa, Canada.

Independent Researcher, Ottawa, Canada.

出版信息

Seizure. 2020 May;78:118-126. doi: 10.1016/j.seizure.2020.04.002. Epub 2020 Apr 18.

Abstract

PURPOSE

To understand the experiences with and perspectives of neurologists about the use of medical cannabis in the treatment of pediatric drug-resistant epilepsy.

METHODS

In this qualitative study, we interviewed neurologists who provide care to children with drug-resistant epilepsy in Canada. Through semi-structured telephone interviews, we sought participants' views about and experiences with medical cannabis for the treatment of drug-resistant epilepsy in children. Here we present a thematic summary of the interviews.

RESULTS

The 12 interviewed neurologists generally perceived medical cannabis as a viable treatment option for children with drug-resistant epilepsy; however, participants identified important gaps in the evidence and implications for their practices. Six themes were generated from the content of the interviews: learning about medical cannabis; perceptions about medical cannabis; discussing medical cannabis with parents; experiences with medical cannabis authorization; barriers to authorizing medical cannabis; and the impact of medical cannabis on clinical care. Of note, while some neurologists took on all aspects of the children's care, including medical cannabis, others referred interested families to non-neurology health care professionals.

CONCLUSION

Our findings highlight the diverse opinions and experiences of neurologists in Canada with medical cannabis for the treatment of drug-resistant epilepsy in children, including with the authorization process and caring for children using medical cannabis. Additional education about medical cannabis may be warranted, in order to better prepare neurologists to have informed and open conversations with parents about this treatment option and to provide care for children using medical cannabis.

摘要

目的

了解神经科医生在治疗儿科耐药性癫痫中使用医用大麻的经验和看法。

方法

在这项定性研究中,我们采访了在加拿大为耐药性癫痫儿童提供护理的神经科医生。通过半结构化电话访谈,我们寻求参与者对医用大麻治疗儿童耐药性癫痫的看法和经验。这里我们呈现了访谈的主题摘要。

结果

12 名接受采访的神经科医生普遍认为医用大麻是治疗耐药性癫痫儿童的可行治疗选择;然而,参与者发现证据存在重要差距,并对其实践产生影响。访谈内容产生了 6 个主题:了解医用大麻;对医用大麻的看法;与家长讨论医用大麻;医用大麻授权经验;医用大麻授权的障碍;以及医用大麻对临床护理的影响。值得注意的是,虽然一些神经科医生负责儿童的所有方面的护理,包括医用大麻,但其他神经科医生将有兴趣的家庭转介给非神经科医疗保健专业人员。

结论

我们的研究结果突出了加拿大神经科医生在治疗儿童耐药性癫痫中对医用大麻的不同看法和经验,包括授权过程和照顾使用医用大麻的儿童。可能需要进一步教育医用大麻,以使神经科医生能够更好地与家长就这一治疗选择进行知情和开放的对话,并为使用医用大麻的儿童提供护理。

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