Department of Psychology, Russell Sage College, Troy, NY, USA.
Psychol Health. 2020 Dec;35(12):1440-1458. doi: 10.1080/08870446.2020.1761978. Epub 2020 May 6.
African American account for more than 60% of women living with HIV/AIDS in the United States. This population is disproportionately affected in areas of diagnosis, treatment, and morbidity. HIV-related stigma has been found to play a pivotal role in the experiences of African American women living with HIV/AIDS (WLWHA) impacting self-perception, treatment adherence, depression, interpersonal relationships, and overall quality of life. Limited studies have explored the ways in which HIV-related stigma impacts the self-perceptions of African American WLWHA. To explore these experiences, this study examined the ways in which HIV-related stigma impacts the intrapersonal experiences of African American WLWHA. A phenomenological investigation was conducted to explore the experiences of African American WLWHA. In-depth, semi-structured qualitative interviews. Interpretive phenomenological analysis revealed four emergent themes: (1) increased vulnerability; (2) processing the diagnosis of HIV/AIDS; (3) surviving HIV/AIDS; and (4) quality of life. Findings of this study contribute to existing literature by highlighting the intricacies of the lived experiences of African American WLWHA from initial diagnosis to present day. Exploring the trajectory of the illness among this population allows for a deeper understanding of the ways in which HIV/AIDS impacts the intrapersonal experiences and self-perceptions of WLWHA.
在美国，非裔美国人占感染艾滋病毒/艾滋病的女性的 60%以上。在诊断、治疗和发病率方面，这一人群受到了不成比例的影响。研究发现，与艾滋病毒相关的耻辱感在感染艾滋病毒的非裔美国妇女（WLWHA）的经历中起着关键作用，影响着自我认知、治疗依从性、抑郁、人际关系和整体生活质量。有限的研究探讨了与艾滋病毒相关的耻辱感如何影响非裔美国 WLWHA 的自我认知。为了探索这些经历，本研究考察了与艾滋病毒相关的耻辱感如何影响非裔美国 WLWHA 的内在体验。进行了一项现象学调查，以探讨与艾滋病毒相关的耻辱感如何影响非裔美国 WLWHA 的内在体验。采用深入的半结构化定性访谈。解释性现象学分析揭示了四个突出的主题：（1）增加的脆弱性；（2）处理艾滋病毒/艾滋病的诊断；（3）在艾滋病毒/艾滋病中生存；（4）生活质量。本研究的结果通过突出非裔美国 WLWHA 从最初诊断到现在的生活经历的复杂性，为现有文献做出了贡献。探讨这一人群中疾病的轨迹可以更深入地了解艾滋病毒/艾滋病如何影响 WLWHA 的内在体验和自我认知。
