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儿科重症监护患者和家属的姑息治疗。

Palliative care for pediatric intensive care patients and families.

机构信息

Department of Pediatrics, Division of Critical Care Medicine, Medical College of Wisconsin, Milwaukee, Wisconsin.

Children's Wisconsin.

出版信息

Curr Opin Pediatr. 2020 Jun;32(3):428-435. doi: 10.1097/MOP.0000000000000903.

DOI:10.1097/MOP.0000000000000903
PMID:32374580
Abstract

PURPOSE OF REVIEW

Children with medical or surgical critical illness or injury require skillful attention to physical, emotional, psychological, and spiritual needs, whereas their families need support and guidance in facing life-threatening or life-changing events and gut-wrenching decisions. This article reviews current evidence and best practices for integrating palliative care into the pediatric intensive care unit (PICU), with a focus on surgical patients.

RECENT FINDINGS

Palliative care is best integrated in a tiered approach, with primary palliative care provided by the PICU and surgical providers for all patients and families, including basic symptom management, high-quality communication, and end-of-life care. Secondary and tertiary levels of care involve unit or team-based 'champions' with additional expertise, and subspecialty palliative care teams, respectively. PICU and surgical providers should be able to provide primary palliative care, to identify patients and families for whom a palliative care consult would be helpful, and should be comfortable introducing the concept of palliative care to families.

SUMMARY

This review provides a framework and tools to enable PICU and surgical providers to integrate palliative care best practices into patient and family care.

摘要

目的综述

患有医学或外科重病或损伤的儿童需要熟练关注身体、情感、心理和精神需求,而他们的家人则需要在面对威胁生命或改变生活的事件和令人痛心的决策时得到支持和指导。本文综述了将姑息治疗纳入儿科重症监护病房(PICU)的当前证据和最佳实践,重点关注外科患者。

最近的发现

姑息治疗最好通过分层方法进行整合,由 PICU 和外科医生为所有患者和家属提供初级姑息治疗,包括基本症状管理、高质量沟通和临终关怀。二级和三级护理分别涉及具有额外专业知识的单位或团队“拥护者”和专科姑息治疗团队。PICU 和外科医生应该能够提供初级姑息治疗,识别需要姑息治疗咨询的患者和家属,并能够舒适地向家属介绍姑息治疗的概念。

总结

本综述提供了一个框架和工具,使 PICU 和外科医生能够将姑息治疗的最佳实践纳入患者和家属的护理中。

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Impact of neonatal palliative care on neonates, their parents, and nurses: a systematic review.新生儿姑息治疗对新生儿、其父母及护士的影响:一项系统综述
Palliat Care Soc Pract. 2025 Mar 15;19:26323524251326103. doi: 10.1177/26323524251326103. eCollection 2025.
2
Moral Distress and Pediatric Palliative Care.道德困扰与儿童姑息治疗。
Children (Basel). 2024 Jun 21;11(7):751. doi: 10.3390/children11070751.
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Individual illness dynamics: An analysis of children with sepsis admitted to the pediatric intensive care unit.个体疾病动态:对入住儿科重症监护病房的脓毒症患儿的分析。
PLOS Digit Health. 2022 Mar 17;1(3):e0000019. doi: 10.1371/journal.pdig.0000019. eCollection 2022 Mar.
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"More life and more days"-patient and care characteristics in a specialized acute pediatric palliative care inpatient unit.“更多的生命和更多的日子”-专科急性儿科姑息治疗住院病房的患者和护理特点。
Eur J Pediatr. 2023 Apr;182(4):1847-1855. doi: 10.1007/s00431-023-04813-8. Epub 2023 Feb 16.
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Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit.姑息治疗与重症监护:它们在儿科重症监护病房的融合
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