Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, F-59000 Lille, France.
Psychogeriatrics. 2020 Sep;20(5):594-601. doi: 10.1111/psyg.12553. Epub 2020 May 10.
The caregiving situation differs according to the type of relationship between the patient caregiver, and among dementia caregivers, living with the person with dementia can contribute to caregiver distress. This study aimed to identify the predictors of caregiver distress based on caregiver profile: spouse, adult child living with the person with dementia, and adult child not living with the person with dementia.
In total, 213 caregivers participated in this study. Their responses to questionnaires helped identify the positive and negative implications of the caregiving situation and the level of caregiver distress. The analyses consisted of univariate and multiple linear regression models using a forward method.
Based on the standardized beta scores, the variables that are the most significant in predicting spouse caregiver distress are the impact on health and impact on schedule. The variable that is the most significant in predicting the distress of adult child caregivers living with the person with dementia is the impact on health. The variables that are the most significant in predicting the distress of adult child caregivers not living with the person with dementia are the impact on health, impact on schedule, and impact on finances.
The results make it possible to consider different approaches to providing support, including evaluating the health of all caregivers, giving guidance on accepting help and focusing caregivers' actions on their values for spouse caregivers, providing family mediation for adult child caregivers living with the person with dementia, and offering information and assistance on the available aids for adult child caregivers not living with the person with dementia.
患者与照护者之间的关系类型不同,痴呆症照护者的照护情况也不同,与痴呆症患者共同生活可能会导致照护者的痛苦。本研究旨在根据照护者的特征(配偶、与患者共同生活的成年子女和不与患者共同生活的成年子女),确定照护者痛苦的预测因素。
共有 213 名照护者参加了这项研究。他们对问卷的回答有助于确定照护情况的积极和消极影响,以及照护者的痛苦程度。分析包括使用正向方法的单变量和多元线性回归模型。
根据标准化β分数,对配偶照护者痛苦预测最显著的变量是对健康的影响和对日程的影响。对与患者共同生活的成年子女照护者痛苦预测最显著的变量是对健康的影响。对不与患者共同生活的成年子女照护者痛苦预测最显著的变量是对健康、日程和财务的影响。
研究结果可以考虑提供不同支持方法,包括评估所有照护者的健康状况,提供关于接受帮助的指导,并关注配偶照护者的价值观,为与患者共同生活的成年子女照护者提供家庭调解,以及为不与患者共同生活的成年子女照护者提供有关可用辅助工具的信息和帮助。