Institute for Biomedical Ethics, University of Basel, Basel, Switzerland.
Département de l'Enfant et de l'Adolescent, Onco-hématologie pédiatrique, Hôpitaux Universitaires de Genève, Geneve, Switzerland.
J Adolesc Young Adult Oncol. 2020 Oct;9(5):561-571. doi: 10.1089/jayao.2019.0168. Epub 2020 May 12.
Adolescents and young adults (AYA) with cancer present a unique challenge to health care institutions. Their cancer diagnosis and treatment have a profound impact upon their health and well-being. Despite the various support services aimed at improving their quality of life, their needs and preferences are often underestimated or misjudged. Recent studies show that patients are empowered by the knowledge and support they receive online. Given the extensive use of social media among AYA, we aim to identify promises, challenges, and recommendations for integrating these platforms in AYA cancer care. We systematically searched seven databases systematically: Scopus, PubMed, PsycInfo, Web of Science, CINAHL, SocINDEX, and Media. We placed no restriction on the type of methodology used in the studies. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses was used to frame the research. Many studies argued that health care professionals need to integrate social media in their clinical practice to engage with patients' lifeworld. Social media were considered important allies in optimizing cancer care at all levels of support, ranging from information provision, treatment adherence, diet and exercise interventions, to professional, peer, and psychosocial self-care. Lack of research on the efficacy of social media in the context of psychosocial support was a commonly cited problem. A small number of publications paid attention to the inherent risks of promoting self-care online. Future studies should continue to pursue empirical research on the efficacy of online psychosocial care, while not neglecting the ethical challenges of social media research.
青少年和青年癌症患者(AYA)给医疗机构带来了独特的挑战。他们的癌症诊断和治疗对他们的健康和幸福有着深远的影响。尽管有各种旨在提高生活质量的支持服务,但他们的需求和偏好往往被低估或误解。最近的研究表明,患者从他们在线获得的知识和支持中获得了力量。鉴于 AYA 广泛使用社交媒体,我们旨在确定在 AYA 癌症护理中整合这些平台的承诺、挑战和建议。
Scopus、PubMed、PsycInfo、Web of Science、CINAHL、SocINDEX 和 Media。我们没有对研究中使用的方法类型进行限制。使用系统评价和荟萃分析的首选报告项目来构建研究。
许多研究认为,医疗保健专业人员需要将社交媒体整合到他们的临床实践中,以接触患者的生活世界。社交媒体被认为是在各级支持中优化癌症护理的重要盟友,从信息提供、治疗依从性、饮食和运动干预,到专业、同伴和心理社会自我护理。缺乏关于社交媒体在心理社会支持背景下疗效的研究是一个常见的问题。少数出版物关注在网上促进自我护理的固有风险。
未来的研究应继续进行在线心理社会护理疗效的实证研究,同时不应忽视社交媒体研究的伦理挑战。