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胚胎调控与研究:澳大利亚人类生殖系基因组编辑的现状如何?

Embryonic Regulation and Research: What Is the Status of Human Germline Genome Editing in Australia?

作者信息

Burbery Rose

机构信息

LLB (Hons) Student, Griffith Law School, Griffith University, BHSc, Griffith University.

出版信息

J Law Med. 2020 Apr;27(3):718-740.

Abstract

This article considers the status of human germline genome editing in Australia. Through an analysis of the current State, Territory and Commonwealth legal and ethical regulatory frameworks, and incorporating the capability approach to health justice proposed by Martha Nussbaum and Amartya Sen, the article argues that heritable alterations using CRISPR/Cas9 technology in a clinical context are inevitable in Australia, so the law needs to respond adequately to these scientific advances. The article concludes that human germline genome editing is currently not, and should not, be lawful in Australia, except for research purposes.

摘要

本文探讨了澳大利亚人类生殖系基因组编辑的现状。通过分析当前州、领地和联邦的法律及伦理监管框架,并纳入玛莎·努斯鲍姆和阿玛蒂亚·森提出的健康正义能力方法,本文认为,在澳大利亚临床环境中使用CRISPR/Cas9技术进行可遗传改变是不可避免的,因此法律需要对这些科学进展做出充分回应。本文得出结论,目前在澳大利亚,除用于研究目的外,人类生殖系基因组编辑不合法,也不应合法。

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