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巴西脊髓损伤患者的希望意义。

The meaning of hope for individuals with spinal cord injury in Brazil.

机构信息

PhD Student in Nursing, Federal University of Santa Catarina, Brazil.

Professor, Nursing Department, Graduate Nursing Programme, Federal University of Santa Catarina, Brazil.

出版信息

Br J Nurs. 2020 May 14;29(9):526-532. doi: 10.12968/bjon.2020.29.9.526.

DOI:10.12968/bjon.2020.29.9.526
PMID:32407225
Abstract

AIM

To understand the meaning of hope among individuals with spinal cord injury.

DESIGN

A qualitative study employing the ethnographic method was used, with 18 individuals.

METHOD

Participant observation was chosen to understand individuals with spinal cord injury and interviews were used to elicit information about the hope experience. The data were analysed using Ernst Bloch's theory of hope.

FINDINGS

Participants constructed their own personality and sense of self, including their hopes for their future, based on their life before their injury. Life after experiencing spinal cord injury highlighted the limitations and potentialities of their hopes. Using a sense of hope to establish goals for the future helped participants overcome obstacles.

CONCLUSION

Hope in people with spinal cord injury helped them cope with the fundamental changes to their daily lives. Hope played an important role in articulating coping strategies and setting and achieving goals. These findings may help nurses understand the limits and potentialities of hope as an instigator of goals in the daily life of individuals with spinal cord injury.

摘要

目的

了解脊髓损伤个体的希望意义。

设计

采用人种学方法的定性研究,共纳入 18 名参与者。

方法

选择参与式观察来了解脊髓损伤个体,并采用访谈来获取有关希望体验的信息。使用恩斯特·布洛赫的希望理论对数据进行分析。

结果

参与者根据受伤前的生活,构建了自己的个性和自我意识,包括对未来的希望。经历脊髓损伤后的生活凸显了他们希望的局限性和可能性。利用希望感为未来设定目标有助于参与者克服障碍。

结论

脊髓损伤患者的希望帮助他们应对日常生活的根本性变化。希望在表达应对策略以及设定和实现目标方面发挥了重要作用。这些发现可能有助于护士理解希望作为脊髓损伤患者日常生活中目标推动者的局限性和可能性。

相似文献

1
The meaning of hope for individuals with spinal cord injury in Brazil.巴西脊髓损伤患者的希望意义。
Br J Nurs. 2020 May 14;29(9):526-532. doi: 10.12968/bjon.2020.29.9.526.
2
Hope as a coping strategy for the spinal cord injured individual.希望作为脊髓损伤个体的一种应对策略。
Axone. 1993 Dec;15(2):40-6.
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The power of hope: patients' experiences of hope a year after acute spinal cord injury.希望的力量:急性脊髓损伤一年后患者的希望体验
J Clin Nurs. 2006 Mar;15(3):315-23. doi: 10.1111/j.1365-2702.2006.01301.x.
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Hope during the first months after acute spinal cord injury.急性脊髓损伤后最初几个月的希望。
J Adv Nurs. 2004 Aug;47(3):279-86. doi: 10.1111/j.1365-2648.2004.03099.x.
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Mediators of disability and hope for people with spinal cord injury.脊髓损伤患者残疾与希望的中介因素
Disabil Rehabil. 2016 Aug;38(17):1672-83. doi: 10.3109/09638288.2015.1107639. Epub 2015 Dec 17.
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Patients' experiences of hope and suffering during the first year following acute spinal cord injury.急性脊髓损伤后第一年患者的希望与痛苦体验。
J Clin Nurs. 2005 Mar;14(3):285-93. doi: 10.1111/j.1365-2702.2004.01088.x.
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Coping strategies used by people with spinal cord injury: a qualitative study.脊髓损伤患者使用的应对策略:一项定性研究。
Spinal Cord. 2011 Jul;49(7):832-7. doi: 10.1038/sc.2011.10. Epub 2011 Feb 22.
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Back to life again--patients' experiences of hope three to four years after a spinal cord injury--a longitudinal study.重获新生——脊髓损伤三到四年后患者的希望体验——一项纵向研究
Can J Neurosci Nurs. 2009;31(2):20-5.
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Hope and despair: the awakening of hope following acute spinal cord injury-an interpretative study.
Int J Nurs Stud. 2004 Nov;41(8):881-90. doi: 10.1016/j.ijnurstu.2004.04.002.
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[A new sense for living: a comprehensive study about the adaptation process following spinal cord injuries].[一种新的生活感悟:关于脊髓损伤后适应过程的综合研究]
Rev Esc Enferm USP. 2009 Sep;43(3):573-80. doi: 10.1590/s0080-62342009000300011.

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