University of Exeter, Exeter, UK.
University of Plymouth, Plymouth, UK.
Health Expect. 2021 May;24 Suppl 1(Suppl 1):113-121. doi: 10.1111/hex.13065. Epub 2020 May 24.
Involving patients, service users, carers and members of the public in research has been part of health policy and practice in the UK for the last 15 years. However, low-income communities tend to remain marginalized from the co-design and delivery of mental health research, perpetuating the potential for health inequalities. Greater understanding is therefore needed on how to meaningfully engage low-income communities in mental health research.
To explore and articulate whether and how an engaged research approach facilitated knowledge coproduction relating to poverty and mental distress.
A reflective evaluation of community and researcher engagement in the DeStress study that took place in two low-income areas of South-west England.
Reflective evaluation by the authors through on-going feedback, a focus group and first-person writing and discussion on experiences of working with the DeStress project, and how knowledge coproduction was influenced by an engaged research approach.
An engaged research approach influenced the process and delivery of the DeStress project, creating a space where community partners felt empowered to coproduce knowledge relating to poverty-related mental distress, treatment and the training of health professionals that would otherwise have been missed. We examine motivations for involvement, factors sustaining engagement, how coproduction influenced research analysis, findings and dissemination of outputs, and what involvement meant for different stakeholders.
Engaged research supported the coproduction of knowledge in mental health research with low-income communities which led to multiple impacts.
在过去的 15 年中,让患者、服务使用者、护理人员和公众参与研究一直是英国卫生政策和实践的一部分。然而,低收入社区往往仍然被排除在心理健康研究的共同设计和实施之外,从而使健康不平等的可能性持续存在。因此,需要更多地了解如何让低收入社区有意义地参与心理健康研究。
探讨并阐明参与式研究方法是否以及如何促进与贫困和精神困扰相关的知识共同生产。
对在英格兰西南部两个低收入地区进行的 DeStress 研究中的社区和研究人员参与情况进行的反思性评估。
通过持续反馈、焦点小组以及关于与 DeStress 项目合作的经验的第一人称写作和讨论,作者进行了反思性评估,并探讨了参与式研究方法如何影响知识共同生产。
参与式研究方法影响了 DeStress 项目的过程和实施,为社区合作伙伴创造了一个空间,使他们有能力共同生产与贫困相关的精神困扰、治疗和卫生专业人员培训相关的知识,否则这些知识将被忽视。我们考察了参与的动机、维持参与的因素、共同生产如何影响研究分析、研究结果和研究结果的传播,以及参与对不同利益相关者意味着什么。
参与式研究支持了与低收入社区的心理健康研究中的知识共同生产,这带来了多种影响。