Section of Pediatric Diabetes and Endocrinology, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, Texas, USA.
Division of Reproductive Endocrinology and Infertility, Department of Obstetrics and Gynecology, University of California Los Angeles, Los Angeles, California, USA.
J Adolesc Young Adult Oncol. 2021 Feb;10(1):66-70. doi: 10.1089/jayao.2020.0003. Epub 2020 May 27.
To evaluate the availability of fertility preservation (FP) services and educational resources on the websites of top-ranked U.S. pediatric cancer programs. Cross-sectional survey of information and resources related to FP on websites from top-ranked pediatric cancer programs according to the 2018-2019 U.S.-News & World Report (USNWR) ranking. Factors that predicted the website availability of FP information or a fertility team were analyzed, as was availability in Spanish and for specific groups by sex and puberty status. As a surrogate marker of comprehensive oncological services, the availability of resources for psychological support was compared to FP. A fertility team was referenced on the website of 36% of programs, but only 32% provided FP educational resources for patients. Among them, 100%, 93.8%, 93.8%, and 68.8% provided specific information for postpubertal females, prepubertal females, postpubertal males, and prepubertal males, respectively. The majority (93.8%) did not provide information in Spanish. The ranking on USNWR ( < 0.05) and patient volume ( < 0.05) positively correlated with the availability of FP information and fertility team on the program's website. Information regarding psychological support was provided more often than information regarding FP (96% vs. 32%, < 0.05). The majority of the top-ranked pediatric cancer programs in the United States do not list FP resources or a fertility team on their website. The lack of resources is particularly concerning for the Spanish-speaking population, as well as for prepubertal males. This may be potentially hindering access to FP and contributing to health care disparities.
评估美国顶尖儿科癌症项目网站上提供的生育力保存 (FP) 服务和教育资源的可用性。 根据 2018-2019 年美国新闻与世界报道 (USNWR) 的排名，对顶级儿科癌症项目网站上与 FP 相关的信息和资源进行横断面调查。 分析了预测网站提供 FP 信息或生育团队的可用性的因素，以及西班牙语和特定性别和青春期状态群体的可用性。 作为全面肿瘤学服务的替代标志物，比较了提供心理支持资源与 FP 的可用性。 36%的项目网站上提到了生育团队，但只有 32%的项目为患者提供 FP 教育资源。 其中，分别为青春期后女性、青春期前女性、青春期后男性和青春期前男性提供了 100%、93.8%、93.8%和 68.8%的具体信息。 大多数（93.8%）没有提供西班牙语信息。 在 USNWR 中的排名（ < 0.05）和患者数量（ < 0.05）与项目网站上 FP 信息和生育团队的可用性呈正相关。 提供有关心理支持的信息比提供有关 FP 的信息更为常见（96%比 32%， < 0.05）。 美国大多数顶尖儿科癌症项目的网站并未列出 FP 资源或生育团队。 对于讲西班牙语的人群以及青春期前男性，资源的缺乏尤其令人担忧。 这可能会潜在地阻碍 FP 的获取，并导致医疗保健差距。
