Pediatric Nursing Department, Faculty of Health Sciences, Artvin Çoruh University, Artvin, Turkey.
Pediatric Nursing Department, Faculty of Nursing, Atılım University, Ankara/Turkey.
J Pediatr Nurs. 2020 Sep-Oct;54:e91-e96. doi: 10.1016/j.pedn.2020.05.007. Epub 2020 May 25.
To determine the purpose of the parents of infants with cleft lip and/or palate (CL/P) for using Facebook, how they share for the audience and what kind of information they search for.
The results of the study were analyzed using qualitative and quantitative methodologies. Data were collected for one major social media platform (Facebook) from public accounts dedicated to CL/P. The former involved thematic and word count analysis for online posts on the Facebook platform, while the latter employed descriptive statistics.
Facebook has a total of 8 group accounts and 7695 users in Turkey. Among the 702 posts analyzed, "requesting information" was found to be the most commonly encountered theme (55.4%). This study, it was determined that especially parents of infants with CL/P need information about surgery. The "announcement" was mentioned in only 3.3% of all posts. Our text analysis of 17.134 words mentioned in posts revealed that the most common word was surgery (6.6%).
The current study provides a comprehensive reference to the role of social media in CL/P.
In the near future, analysis of patients' and public knowledge and perception of surgery will be an important next step in building greater awareness of its role in the management of CL/P.
确定唇腭裂（CL/P）婴儿父母使用 Facebook 的目的、他们为谁分享以及他们搜索哪种信息。
使用定性和定量方法分析研究结果。从专门针对 CL/P 的公共账户中为一个主要社交媒体平台（Facebook）收集数据。前者涉及 Facebook 平台上的在线帖子的主题和字数分析，而后者则采用描述性统计。
土耳其的 Facebook 共有 8 个群组账户和 7695 名用户。在分析的 702 个帖子中，“请求信息”是最常见的主题（55.4%）。本研究确定，尤其是唇腭裂婴儿的父母需要有关手术的信息。在所有帖子中，仅提到了 3.3%的“公告”。我们对帖子中提到的 17134 个单词进行的文本分析显示，最常见的词是手术（6.6%）。
目前的研究为社交媒体在 CL/P 中的作用提供了全面的参考。
在不久的将来，分析患者和公众对手术的知识和认知将是提高对其在 CL/P 管理中作用的认识的重要下一步。
