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Improving the Quality of Care for Adolescents and Adults With Sickle Cell Disease-It's a Long Road.

作者信息

Oyedeji Charity, Strouse John J

机构信息

Division of Hematology, Department of Medicine, Duke University School of Medicine, Durham, North Carolina.

Division of Pediatric Hematology-Oncology, Department of Pediatrics, Duke University School of Medicine, Durham, North Carolina.

出版信息

JAMA Netw Open. 2020 May 1;3(5):e206377. doi: 10.1001/jamanetworkopen.2020.6377.

DOI:10.1001/jamanetworkopen.2020.6377
PMID:32469408
Abstract
摘要

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Improving the Quality of Care for Adolescents and Adults With Sickle Cell Disease-It's a Long Road.改善镰状细胞病青少年和成人的护理质量——任重道远。
JAMA Netw Open. 2020 May 1;3(5):e206377. doi: 10.1001/jamanetworkopen.2020.6377.
2
Sickle cell center provides model for management of chronic disease.镰状细胞中心为慢性病管理提供了范例。
Clin Resour Manag. 2001 Jan;2(1):13-6, 1.
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Improving care for people with sickle cell disease.改善镰状细胞病患者的护理。
Health Educ J. 1988;47(2-3):70. doi: 10.1177/001789698804700211.
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Health perceptions and medical care opinions of inner-city adults with sickle cell disease or asthma compared with those of their siblings.镰状细胞病或哮喘的市中心成年人与其兄弟姐妹相比的健康认知和医疗护理意见。
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Sickle cell: it's in the blood.镰状细胞:存在于血液中。
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Transitioning adolescents with sickle cell disease to adult-centered care.将镰状细胞病青少年患者转诊至以成人为主的护理模式。
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7
[Quality of Life of Adolescents with Homozygous Sickle-Cell Disease Managed at the Brazzaville Teaching Hospital (Congo)].[在布拉柴维尔教学医院(刚果)接受治疗的纯合子镰状细胞病青少年的生活质量]
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Adolescents' experiences of living with sickle cell disease: An integrative narrative review of the literature.青少年患镰状细胞病的体验:文献综合叙事性综述。
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A transition pilot program for adolescents with sickle cell disease.镰状细胞病青少年的过渡试点项目。
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[Manifestations of sickle cell disease in adolescents and young adults. Clinical aspects and therapy references].[青少年和青年镰状细胞病的表现。临床方面及治疗参考]
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Return visit rates after an emergency department discharge for children with sickle cell pain episodes.因镰状细胞疼痛发作而从急诊科出院后的复诊率。
Pediatr Blood Cancer. 2023 Oct;70(10):e30553. doi: 10.1002/pbc.30553. Epub 2023 Jul 17.
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Characterising the prevalence of overweight and obese status among adults with sickle cell disease.描述镰状细胞病成年患者超重和肥胖状况的流行情况。
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Pilot Feasibility Stud. 2020 Sep 17;6:131. doi: 10.1186/s40814-020-00673-3. eCollection 2020.