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德国帕金森病患者在新冠疫情期间的知识、态度、行为及负担

Knowledge, Attitudes, Practices, and Burden During the COVID-19 Pandemic in People with Parkinson's Disease in Germany.

作者信息

Zipprich Hannah M, Teschner Ulrike, Witte Otto W, Schönenberg Aline, Prell Tino

机构信息

Department of Neurology, Jena University Hospital, 07743 Jena, Germany.

Center for Healthy Ageing, Jena University Hospital, 07743 Jena, Germany.

出版信息

J Clin Med. 2020 May 29;9(6):1643. doi: 10.3390/jcm9061643.

DOI:10.3390/jcm9061643
PMID:32486074
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7355903/
Abstract

: Adherence to measures that have been adopted during the COVID-19 pandemic is crucial to control the spread of the coronavirus. : Semi-structured telephone interviews were performed with 99 patients with Parkinson's disease (PD) and 21 controls to explore knowledge, attitudes, practices, and burden in order to elucidate nonadherence to preventive measures. : The majority of patients understood the preventive measures and felt sufficiently informed. Analysis of qualitative answers, however, showed that about 30% of patients had an insufficient level of knowledge, which was not associated with educational level, cognitive disorders, or depression. Changes in behaviour were reported by 73 patients (99% performed at least one specific preventive behavior, and 86.9% have reduced social contacts and stayed home). A closer analysis of qualitative answers showed that 27.3% of patients continued to meet relatives face-to-face almost daily. Anxiety and worries about the current situation were reported by 58.6% of patients; 31.3% complained about a decrease in their mobility since the beginning of the restrictions, mainly because of worsening of PD and because regular therapies (e.g., physiotherapy) were canceled. : About 30% of PD patients are nonadherent to preventive measures. Use of simple dichotomous questions overestimates adherence to preventive measures in patients with PD.

摘要

遵守在新冠疫情期间所采取的措施对于控制冠状病毒的传播至关重要。对99名帕金森病(PD)患者和21名对照者进行了半结构化电话访谈,以探究知识、态度、行为及负担情况,从而阐明不遵守预防措施的原因。大多数患者理解预防措施并觉得已充分了解相关信息。然而,对定性回答的分析表明,约30%的患者知识水平不足,这与教育程度、认知障碍或抑郁无关。73名患者报告了行为变化(99%至少进行了一种特定的预防行为,86.9%减少了社交接触并居家)。对定性回答的进一步分析表明,27.3%的患者几乎每天都继续与亲属面对面接触。58.6%的患者报告了对当前形势的焦虑和担忧;31.3%的患者抱怨自限制措施开始以来行动能力下降,主要原因是帕金森病恶化以及常规治疗(如物理治疗)被取消。约30%的帕金森病患者不遵守预防措施。使用简单的二分法问题高估了帕金森病患者对预防措施的遵守情况。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/521f/7355903/eeb179cfa0b6/jcm-09-01643-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/521f/7355903/0845fd044bf6/jcm-09-01643-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/521f/7355903/eeb179cfa0b6/jcm-09-01643-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/521f/7355903/0845fd044bf6/jcm-09-01643-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/521f/7355903/eeb179cfa0b6/jcm-09-01643-g002.jpg

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