Bull L E, Oliver C, Woodcock K A
Great Ormond Street Hospital for Children, Great Ormond Street, London, WC1N 3JH, UK.
Cerebra Centre for Neurodevelopmental Disorders, School of Psychology, University of Birmingham, 52 Pritchatts Road, Edgbaston, Birmingham, B15 2SA, UK.
J Autism Dev Disord. 2021 Jan;51(1):286-297. doi: 10.1007/s10803-020-04504-5.
Skin picking is highly prevalent in people with Prader-Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research.
皮肤搔抓在普拉德-威利综合征（PWS）患者中极为普遍。本研究探讨了皮肤搔抓的时间特征（频率、持续时间）以及更广泛的特征（例如搔抓的皮肤类型、明显动机或管理策略），以为干预策略提供依据。19位观察其照料对象出现皮肤搔抓行为的父母/照料者完成了一次半结构化访谈。研究结果与之前的研究一致，但通过发现大多数参与者搔抓有瑕疵的皮肤，且父母/照料者最常使用分散注意力作为管理策略，推动了该领域的发展。因此，行为性的、支持情绪调节的和/或在正常发育人群中使用的干预措施可能对未来研究有益。
