Stanford University School of Medicine, Palo Alto, CA, USA.
J Empir Res Hum Res Ethics. 2020 Dec;15(5):452-464. doi: 10.1177/1556264620927583. Epub 2020 Jun 18.
This study assessed mothers' perspectives regarding research involvement by their children, factors that might affect perceptions of research risks, and attitudes regarding willingness to enroll children in research. Participants completed a survey on Amazon Mechanical Turk. Mothers were less inclined to enroll children in research involving procedures posing higher risk (regression coefficient = -0.51). Mothers without mental health issues with children without health issues were more sensitive to risk than mothers without mental health issues with children with health issues (estimated difference = 0.49). Mothers with mental health issues were more willing than mothers without mental health issues to enroll children in research (regression coefficient = -0.90). Among mothers with mental health issues, having a child with a health issue was associated with increased willingness to enroll in research, compared with having children without health issues (estimated difference = 0.65).
这项研究评估了母亲对于其子女参与研究的看法、可能影响对研究风险看法的因素,以及对于让子女参与研究的意愿的态度。参与者在亚马逊土耳其机器人上完成了一项调查。母亲不太倾向于让孩子参与涉及更高风险程序的研究(回归系数=-0.51)。与没有心理健康问题且孩子没有健康问题的母亲相比,没有心理健康问题但孩子有健康问题的母亲对风险更为敏感(估计差异=0.49)。有心理健康问题的母亲比没有心理健康问题的母亲更愿意让孩子参与研究(回归系数=-0.90)。在有心理健康问题的母亲中,与没有健康问题的孩子相比,有健康问题的孩子的母亲更愿意让孩子参与研究(估计差异=0.65)。