Department of Women's Studies, California State University, Sacramento, California, USA.
J Lesbian Stud. 2021;25(3):195-211. doi: 10.1080/10894160.2020.1778852. Epub 2020 Jun 22.
This project defines broadly, including chronic illnesses that involve the uterus, ovaries, and other body parts traditionally classified as "female." I interrogate the usage of language such as and using endometriosis, a common chronic illness that can cause severe pain, fatigue, system-wide effects, and infertility. It affects at least ten percent of cisgender women as well as unmeasured numbers of cisgender men and transgender and gender nonconforming people, occurring more commonly than migraines or Crohn's disease. Endometriosis symptoms are often debilitating and can lead to un-/under-employment, reduced quality of life, and even suicide. Once nearly invisible, endometriosis has enjoyed recent public discussion, as major news outlets have reported the individual and social costs of endometriosis, and public figures have spoken out about their experiences. However, increased public spotlight has led to the proliferation of a narrative that endo is primarily a reproductive disease, a myth begun in medical literature nearly a century ago, which overlooks significant medical evidence and drives interventions that have high rates of failure and often cause further impairment. This paper examines locations where queerness meets gendered ableism, arguing that imagining endo as a gendered disability would be a first step toward decoupling compulsory heterosexuality from compulsory able-bodiedness. I also articulate gender-neutral ways to discuss endo and recommendations for more inclusive and accurate language and practices.
本项目广泛定义了生殖系统疾病,包括涉及子宫、卵巢和其他传统上被归类为“女性”的身体部位的慢性疾病。我使用子宫内膜异位症等语言来进行质问,子宫内膜异位症是一种常见的慢性疾病,可导致严重疼痛、疲劳、全身性影响和不孕。它影响至少 10%的顺性别女性以及未被测量的顺性别男性和跨性别及性别非规范人群,其发病率高于偏头痛或克罗恩病。子宫内膜异位症的症状常常使人衰弱,并可能导致失业/就业不足、生活质量下降,甚至自杀。曾经几乎看不见的子宫内膜异位症,近年来受到了公众的关注,因为主要新闻媒体报道了子宫内膜异位症的个人和社会成本,公众人物也公开谈论了他们的经历。然而,公众关注度的提高导致了一种叙述的泛滥,即子宫内膜异位症主要是一种生殖疾病,这一神话始于近一个世纪前的医学文献,它忽视了重要的医学证据,并推动了干预措施,这些干预措施失败率很高,而且常常导致进一步的损害。本文探讨了酷儿身份与性别残疾歧视相遇的地方,认为将子宫内膜异位症想象为一种性别残疾将是将强制性异性恋与强制性身体健全性脱钩的第一步。我还阐明了用中性性别讨论子宫内膜异位症的方法,并为更具包容性和准确性的语言和实践提出了建议。