肌萎缩侧索硬化症的多学科护理：一项为期4年的纵向观察研究。
Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study.
作者信息
Sukockienė Eglė, Iancu Ferfoglia Ruxandra, Truffert André, Héritier Barras Anne-Chantal, Genton Laurence, Viatte Valérie, Leuchter Igor, Escher Monica, Horie Ninon, Poncet Antoine, Pasquina Patrick, Adler Dan, Janssens Jean-Paul
机构信息
Division of Neurology, Department of Clinical Neurosciences, Geneva University Hospitals, Geneva, Switzerland.
Division of Neurology, Department of Clinical Neurosciences, Geneva University Hospitals, Geneva, Switzerland / Faculty of Medicine, University of Geneva, Switzerland.
出版信息
Swiss Med Wkly. 2020 Jun 9;150:w20258. doi: 10.4414/smw.2020.20258. eCollection 2020 Jun 1.
Over a four-year period, ALS patients complied with the modalities of the multidisciplinary management follow-up without any drop-outs. The multidisciplinary management structure also contributes to increasing the experience and knowledge of the clinicians involved in managing patients suffering from this rare disease.
在四年的时间里，肌萎缩侧索硬化症（ALS）患者遵循多学科管理随访的模式，没有出现任何退出情况。多学科管理结构也有助于增加参与管理这种罕见疾病患者的临床医生的经验和知识。
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