• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

肌萎缩侧索硬化症的多学科护理:一项为期4年的纵向观察研究。

Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study.

作者信息

Sukockienė Eglė, Iancu Ferfoglia Ruxandra, Truffert André, Héritier Barras Anne-Chantal, Genton Laurence, Viatte Valérie, Leuchter Igor, Escher Monica, Horie Ninon, Poncet Antoine, Pasquina Patrick, Adler Dan, Janssens Jean-Paul

机构信息

Division of Neurology, Department of Clinical Neurosciences, Geneva University Hospitals, Geneva, Switzerland.

Division of Neurology, Department of Clinical Neurosciences, Geneva University Hospitals, Geneva, Switzerland / Faculty of Medicine, University of Geneva, Switzerland.

出版信息

Swiss Med Wkly. 2020 Jun 9;150:w20258. doi: 10.4414/smw.2020.20258. eCollection 2020 Jun 1.

DOI:10.4414/smw.2020.20258
PMID:32579697
Abstract

Over a four-year period, ALS patients complied with the modalities of the multidisciplinary management follow-up without any drop-outs. The multidisciplinary management structure also contributes to increasing the experience and knowledge of the clinicians involved in managing patients suffering from this rare disease.

摘要

在四年的时间里,肌萎缩侧索硬化症(ALS)患者遵循多学科管理随访的模式,没有出现任何退出情况。多学科管理结构也有助于增加参与管理这种罕见疾病患者的临床医生的经验和知识。

相似文献

1
Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study.肌萎缩侧索硬化症的多学科护理:一项为期4年的纵向观察研究。
Swiss Med Wkly. 2020 Jun 9;150:w20258. doi: 10.4414/smw.2020.20258. eCollection 2020 Jun 1.
2
A new member of the multidisciplinary ALS team: the otolaryngologist.多学科肌萎缩侧索硬化症治疗团队的新成员:耳鼻喉科医生。
Amyotroph Lateral Scler. 2012 Feb;13(2):229-32. doi: 10.3109/17482968.2011.643898.
3
Managing patients with amyotrophic lateral sclerosis.治疗肌萎缩侧索硬化症患者。
Eur J Intern Med. 2009 Jul;20(4):355-8. doi: 10.1016/j.ejim.2008.09.002. Epub 2008 Oct 11.
4
Multidisciplinary care in ALS: expanding the team.肌萎缩侧索硬化症的多学科护理:扩大团队
Amyotroph Lateral Scler. 2012 Feb;13(2):165. doi: 10.3109/17482968.2012.657006.
5
[The patient's opinion matters: experience in the nutritional care in an ALS multidisciplinary team].[患者的意见很重要:肌萎缩侧索硬化多学科团队的营养护理经验]
Nutr Hosp. 2015 May 7;31 Suppl 5:56-66. doi: 10.3305/nh.2015.31.sup5.9132.
6
The amyotrophic lateral sclerosis center: a model of multidisciplinary management.肌萎缩侧索硬化症中心:多学科管理模式
Phys Med Rehabil Clin N Am. 2008 Aug;19(3):619-31, xi. doi: 10.1016/j.pmr.2008.04.004.
7
Palliative care in amyotrophic lateral sclerosis clinics: A survey of NEALS consortium membership.肌萎缩侧索硬化症诊所的姑息治疗:NEALS 联盟成员调查。
Muscle Nerve. 2021 May;63(5):769-774. doi: 10.1002/mus.27203. Epub 2021 Mar 6.
8
Care management in amyotrophic lateral sclerosis.肌萎缩侧索硬化症的护理管理
Rev Neurol (Paris). 2017 May;173(5):288-299. doi: 10.1016/j.neurol.2017.03.031. Epub 2017 Apr 29.
9
A Guide to Understanding the Benefits of a Multidisciplinary Team Approach to Amyotrophic Lateral Sclerosis (ALS) Treatment.了解多学科团队方法对肌萎缩侧索硬化症(ALS)治疗益处的指南。
Arch Phys Med Rehabil. 2019 Mar;100(3):583-586. doi: 10.1016/j.apmr.2018.05.002. Epub 2018 Jul 17.
10
Multidisciplinary care in Amyotrophic Lateral Sclerosis: a systematic review and meta-analysis.肌萎缩侧索硬化症的多学科护理:一项系统评价和荟萃分析。
Neurol Sci. 2021 Mar;42(3):911-923. doi: 10.1007/s10072-020-05011-2. Epub 2021 Jan 14.

引用本文的文献

1
Analysis of Mortality Causes and Locations in Veterans with ALS: A Decade Review.退伍军人肌萎缩侧索硬化症患者的死亡率原因和地点分析:十年回顾。
Med Sci Monit. 2024 Nov 17;30:e945816. doi: 10.12659/MSM.945816.
2
Veterans with familial ALS and bulbar and respiratory presentations at onset had shorter survival.在发病时具有家族性 ALS 和延髓及呼吸表现的退伍军人的生存时间更短。
Sci Prog. 2024 Jul-Sep;107(3):368504241262902. doi: 10.1177/00368504241262902.
3
Advance directives in amyotrophic lateral sclerosis - a systematic review and meta-analysis.
肌萎缩侧索硬化症中的预先指示 - 系统评价和荟萃分析。
BMC Palliat Care. 2024 Jul 29;23(1):191. doi: 10.1186/s12904-024-01524-1.
4
Accessing and Receiving Speech-Language Pathology Services at the Multidisciplinary Amyotrophic Lateral Sclerosis Clinic: An Exploratory Qualitative Study of Patient Experiences and Needs.在多学科肌萎缩侧索硬化症诊所获取和接受言语-语言病理学服务:一项探索性定性研究患者的体验和需求。
J Speech Lang Hear Res. 2024 Oct 24;67(10S):4025-4037. doi: 10.1044/2023_JSLHR-23-00087. Epub 2023 Sep 7.
5
Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study.瑞士肌萎缩侧索硬化症患者非正式照料者的支持需求:一项定性研究。
Palliat Care Soc Pract. 2022 Feb 28;16:26323524221077700. doi: 10.1177/26323524221077700. eCollection 2022.
6
Demographics, clinical characteristics, and prognostic factors of amyotrophic lateral sclerosis in Midwest.中西部地区肌萎缩侧索硬化症的人口统计学、临床特征和预后因素。
Muscle Nerve. 2022 Feb;65(2):217-224. doi: 10.1002/mus.27450. Epub 2021 Nov 12.