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护士能否帮助改善心房颤动患者的自我护理?一项探索患者疾病知识差距的焦点小组研究。

Can nurses help improve self-care of patients living with atrial fibrillation? A focus group study exploring patients' disease knowledge gaps.

作者信息

Toscos Tammy R, Coupe Amanda, Wagner Shauna, Drouin Michelle, Roebuck Amelia E, Daley Carly N, Carpenter Maria D, Mirro Michael J

机构信息

Parkview Mirro Center for Research & Innovation Parkview Health System Fort Wayne Indiana.

Indiana University School of Informatics and Computing Indianapolis Indiana.

出版信息

Nurs Open. 2020 May 12;7(4):998-1010. doi: 10.1002/nop2.472. eCollection 2020 Jul.

DOI:10.1002/nop2.472
PMID:32587718
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7308702/
Abstract

AIMS

To identify knowledge gaps and preferences for educational material to improve nurse-patient communication and self-care.

DESIGN

Using a mixed-methods design, we conducted focus groups and quantitative surveys.

METHODS

We conducted three focus groups with atrial fibrillation (AF) patients and support persons ( = 17 participants; 66 ± 16 years) at critical treatment junctures (recent diagnosis or medication switch). Patients and support persons were also surveyed on patient activation (self-management skills and knowledge), medication adherence, AF knowledge and health literacy. Iterative thematic analysis was performed using focus group transcripts.

RESULTS

Although most participants had adequate health literacy, most reported gaps in AF knowledge. Participants lacked disease-related knowledge and were unsure how to manage health behaviours (e.g. diet and exercise). Few felt they received adequate education from their healthcare provider. Results emphasize the need for consistent information from nursing staff, in lay language, via both electronic and printed means.

摘要

目的

识别知识差距以及对教育材料的偏好,以改善护士与患者之间的沟通及自我护理。

设计

采用混合方法设计,我们开展了焦点小组和定量调查。

方法

我们在关键治疗节点(近期诊断或药物转换)对心房颤动(AF)患者及其支持人员(共17名参与者;年龄66±16岁)进行了三次焦点小组访谈。还对患者及其支持人员进行了患者激活(自我管理技能和知识)、药物依从性、房颤知识和健康素养方面的调查。使用焦点小组访谈记录进行迭代主题分析。

结果

尽管大多数参与者具备足够的健康素养,但大多数人表示在房颤知识方面存在差距。参与者缺乏与疾病相关的知识,并且不确定如何管理健康行为(如饮食和锻炼)。很少有人觉得他们从医疗服务提供者那里得到了充分的教育。结果强调护理人员需要通过电子和印刷手段,用通俗易懂的语言提供一致的信息。

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本文引用的文献

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The Use of Electronic Personal Health Records to Improve Medication Adherence and Patient Engagement: A Randomized Study of Non-valvular Atrial Fibrillation Patients.使用电子个人健康记录改善药物依从性和患者参与度:非瓣膜性心房颤动患者的一项随机研究。
J Innov Card Rhythm Manag. 2017 Aug 15;8(8):2804-2813. doi: 10.19102/icrm.2017.080803. eCollection 2017 Aug.
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Heart Disease and Stroke Statistics-2019 Update: A Report From the American Heart Association.《2019年心脏病和中风统计数据更新:美国心脏协会报告》
Circulation. 2019 Mar 5;139(10):e56-e528. doi: 10.1161/CIR.0000000000000659.
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Moving beyond description to intervention to improve self-management knowledge for patients with atrial fibrillation.从描述转向干预,以提高心房颤动患者的自我管理知识。
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Patient activation, knowledge, and health literacy association with self-management behaviors in persons with heart failure.心力衰竭患者的患者激活、知识及健康素养与自我管理行为的关联
Heart Lung. 2018 Sep-Oct;47(5):447-451. doi: 10.1016/j.hrtlng.2018.05.021. Epub 2018 Jun 14.
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Strategies for improving dabigatran adherence for stroke prevention in patients with non-valvular atrial fibrillation: education and drug intake reminders (FACILITA study).改善非瓣膜性心房颤动患者达比加群预防卒中依从性的策略:教育与药物服用提醒(FACILITA研究)
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