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隐形人群:了解奥地利以护士为主导的家庭照顾者支持计划的招募障碍。

Invisible population: Understanding recruitment barriers of a nurse-led support programme for families with caregiving children in Austria.

机构信息

Department of Nursing Science University of Vienna Vienna Austria.

出版信息

Nurs Open. 2020 Apr 16;7(4):1164-1172. doi: 10.1002/nop2.491. eCollection 2020 Jul.


DOI:10.1002/nop2.491
PMID:32587736
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7308670/
Abstract

AIMS: To evaluate why no families could be recruited for a nurse-led and family-centred support programme in Austria which aimed to prevent an age-inappropriate caring role for young carers. DESIGN: A qualitative study incorporating qualitative e-interviews and telephone interviews. METHOD: Twenty-one interviews were conducted with statistically significant project stakeholders ( = 17) and with adult family members of children with caring responsibilities ( = 4). Data collection and analysis were guided by the "Social Marketing Framework." Relevant statements were assigned to the main categories: product; price; promotion; place; and working with partners. RESULTS: The lack of awareness towards young carers, the unfamiliar, open outcome approach of the intervention, the inappropriate language used in promotional materials and the families' fear of stigma while seeking support were identified as central obstacles for successful recruitment of families and implementation of the support programme.

摘要

目的:评估为何在奥地利无法招募到家庭参与一项由护士主导、以家庭为中心的支持计划,该计划旨在防止年轻照顾者承担不符合其年龄的照顾责任。

设计:一项纳入定性电子访谈和电话访谈的定性研究。

方法:对具有统计学意义的项目利益相关者(n=17)和有照顾责任的儿童的成年家庭成员(n=4)进行了 21 次访谈。数据收集和分析以“社会营销框架”为指导。相关陈述被分配到以下主要类别:产品;价格;促销;地点;以及与合作伙伴合作。

结果:对年轻照顾者缺乏认识、干预措施不熟悉、开放性的结果方法、宣传材料中使用的不恰当语言以及家庭在寻求支持时担心受到污名化,这些都是成功招募家庭和实施支持计划的核心障碍。

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本文引用的文献

[1]
The prevalence of young carers - a standardised survey amongst school students (KiFam-study).

Scand J Caring Sci. 2020-6

[2]
"You don't look for it"-A study of Swiss professionals' awareness of young carers and their support needs.

Health Soc Care Community. 2018-7

[3]
Being we and being me: Exploring the needs of Austrian families with caring children.

Health Soc Care Community. 2018-7

[4]
Lessons learnt in recruiting disadvantaged families to a birth cohort study.

BMC Nurs. 2018-2-26

[5]
"Something that happens at home and stays at home": An exploration of the lived experience of young carers in Western Australia.

Health Soc Care Community. 2018-7

[6]
The impact of active stakeholder involvement on recruitment, retention and engagement of schools, children and their families in the cluster randomised controlled trial of the Healthy Lifestyles Programme (HeLP): a school-based intervention to prevent obesity.

Trials. 2017-8-14

[7]
Social workers' perceptions of barriers to interpersonal therapy implementation for treating postpartum depression in a primary care setting in Israel.

Health Soc Care Community. 2018-1

[8]
The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review.

J Clin Nurs. 2017-4-11

[9]
Prevention of involuntary admission through Family Group Conferencing: a qualitative case study in community mental health nursing.

J Adv Nurs. 2014-11

[10]
Recruiting Community-Based Dementia Patients and Caregivers in a Nonpharmacologic Randomized Trial: What Works and How Much Does It Cost?

J Appl Gerontol. 2016-7

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