Department of Nursing and Nutrition, University College Copenhagen, Copenhagen, Denmark.
Health Soc Care Community. 2020 Jan;28(1):100-109. doi: 10.1111/hsc.12844. Epub 2019 Sep 2.
Awareness of young carers' experiences and needs is low on governmental and societal levels in Denmark. This article presents findings from the first evaluation of a Danish respite programme, the Buddy Programme, which aims to provide support to young carers aged 5-15 years who experience serious, chronic or mental health problems and/or death of a parent or sibling. Over a four-six month period, volunteer students from University College Copenhagen offer young carers the opportunity of respite through participating in ordinary activities such as play and sports. In 2017-2018, based on a child-centred approach, we conducted a qualitative study with interviews focusing on how the Buddy programme affected the children. The interviews took place at programme start, halfway through, and after completion with 22 children and 21 parents, as well as single interviews with 20 Buddies assigned to families after completion. Three main themes were identified: (1) the Buddy programme as an activity, (2) how the Buddy Programme affected the children and (3) ending the Buddy programme and wanting to continue the friendship. Our findings emphasise the importance of fun and cosy activities that provide children with respite from the serious concerns that otherwise fill the lives of young carers. Being with a Buddy created a free space, allowing children to play undisturbed and to temporarily keep concerns and a guilty conscience at a distance. By offering friendship, Buddies provided opportunities for young carers to feel special, be seen, acknowledged and taken seriously as a child with valid and specific needs and interests. Our findings may help increase awareness of the needs and interests of young carers on governmental and societal levels.
丹麦政府和社会对年轻照顾者的经历和需求的认识程度较低。本文介绍了丹麦喘息计划——“伙伴计划”的首次评估结果,该计划旨在为 5-15 岁经历严重、慢性或心理健康问题和/或父母或兄弟姐妹去世的年轻照顾者提供支持。在四个月至六个月的时间里,哥本哈根大学学院的志愿者学生为年轻照顾者提供参与普通活动的机会,例如玩耍和运动,以此来获得喘息机会。2017-2018 年,我们采用以儿童为中心的方法,对该计划进行了一项定性研究,重点关注“伙伴计划”如何影响儿童。访谈在计划开始时、进行到一半时以及完成后进行,共对 22 名儿童和 21 名家长进行了访谈,此外还对 20 名在计划完成后被分配到家庭的“伙伴”进行了单独访谈。确定了三个主题:(1)“伙伴计划”作为一种活动;(2)“伙伴计划”如何影响儿童;(3)结束“伙伴计划”并希望继续友谊。我们的研究结果强调了有趣和舒适活动的重要性,这些活动可以让儿童从照顾者生活中严重的问题中获得喘息机会。与“伙伴”在一起创造了一个自由的空间,让儿童可以不受干扰地玩耍,暂时将关注和内疚感抛在一边。通过提供友谊,“伙伴”为年轻照顾者提供了机会,让他们感到特别、被看到、被认可,并被认真对待,因为他们是一个有特殊和具体需求和兴趣的孩子。我们的研究结果可能有助于提高政府和社会对年轻照顾者需求和兴趣的认识。